The creation of the non-profit VR Foundation was inspired by an active teen-age girl who was diagnosed with vitiligo at an early age. When her father, Dmitry Aksenov, discovered that there was no effective treatment for vitiligo, he set out to expedite therapy development for this debilitating skin disease.
Although his life experiences are far away from medical research or biotechnology, after years of desperate search for treatment, he has come to the realization that the poor efficiency of existing treatments is a direct result of the lack of funding for vitiligo research. The abysmal state of funding also discourages new researchers who, instead, gravitate to where the money is, leaving a potential gaping hole in future vitiligo research programs.
Mr. Dmitry Aksenov had for many years donated to a variety of social and humanitarian causes – but the establishment of the VR Foundation in 2011 was his first major contribution to the field of medical research. Working with best researchers, Dmitry has seen how researchers are trying diligently to unlock the secrets unique to this skin disease, and many areas are still left under-investigated.
Foundation's CEO Yan Valle, who has been living with vitiligo for over 30 years, is now using his cross-border knowledge of IT and healthcare to reform a system for medical research and drug development that has failed to produce new patient treatments for millions living with this debilitating disease.
I support the petition to designate June 25 as Vitiligo World Day and save millions of people worldwide from social isolation and persecution.
How can I treat vitiligo?
Choosing a treatment for vitiligo can be difficult, sometimes overwhelming. In general, first-line therapy should be safe, effective, minimally invasive, and cost effi...
I have vitiligo: will my children have vitiligo, too?
Although most cases of vitiligo are sporadic, familial clustering is not uncommon, and up to 20% of patients report on the affected relatives. In whites, the lifetime ...
What causes vitiligo?
It remains unclear what causes damage to melanocytes and their subsequent total inactivation and/or disappearance in vitiligo skin. There are several theories; the mos...
Is it possible to stop the progression of vitiligo?
Vitiligo is progressive in 73% of cases and regressive in 1.3%. We usually explain to the patients that progression depends on the modality of the disease spreading: l...