VRF Board meeting decision and policy update

We’re winding down our scientific programs to focus on policy-making and education.

This is a unanimous decision made by the VR Foundation Board of Directors, after careful deliberation about how best to serve the vitiligo community. In a way, we are a victim of our own success in transforming the landscape of vitiligo research, awareness and funding.

Our work has profoundly changed the lives of nearly 100 million vitiligo sufferers and their families. But this comes at a cost - in time, money and effort. The increasing range and volume of global activities is overwhelming our small non-profit organization. Something had to give, which is a major reason for withdrawing the scientific programs.

We have achieved far more in the scientific field than we thought possible, but now it’s time to draw back. We must consider what remaining elements of our scientific program should continue, and how to facilitate free access to our data.

You deserve a full explanation. Check out your mailbox for our newsletter this weekend and you will learn where do we go from here.

This is in no way an epilogue for the VRF. It’s simply an announcement of a new chapter in our story.

Yan Valle,
CEO VR Foundation

13 July 2016 17:35

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