At the VR Foundation we have put forward a clear vision for the standardization of vitiligo medical records, clinical data points and biosample collection procedures.
Our current efforts to implement vitiligo health data standards are driven by issues related to the quality, cost and applicability of existing therapies, patient safety concerns, and our desire to see clinical research findings implemented in clinic as quickly as possible.
Currently, it is easier to collect data on vitiligo patients for prospective clinical trials in advance than it is to access similar clinical data retrospectively. We recommend using the anonymous electronic patient record built in to the Vitiligo CloudBank to participate in collaboration, grants and other programs supported by the VRF.
Alternatively, you can download and use these traditional paper-based forms :
Please be aware that the Vitiligo Patient Record is not a traditional form to be filled out - it actually refers to the variables to be collected and the format they should take. Doctors can make adjustments based on specific needs and add more fields if necessary. We expect the recommended data set will be collected as part of routine primary and follow-up visits.
If you have any questions regarding patient data and the collection of data, please contact us.
I support the petition to designate June 25 as Vitiligo World Day and save millions of people worldwide from social isolation and persecution.
What is coming?
Master Class On Vitiligo In Pediatric Age
will be held alongside “International Forum on Paediatric Dermatology”, which will take place in Rome (Italy), on October 5-7, 2017. This is an exciting opportunity t...06 October 2017 09:00, P.zza Giovanni Randaccio, 1 - Rome...
Master Class On Vitiligo alongside the World Congress Of Dermatology
The Italian Society of Dermatology will host the 24th World Congress of Dermatology in Milan, Italy, under the auspices of the International League of Dermatological ...10 June 2019 09:00, Milan, Italy
Is vitiligo contagious?
Vitiligo is NOT contagious. It cannot be passed on or caught from touching someone with vitiligo, shaking hands, swimming in the same pool, sharing towels, sitting nex...
Are there any famous people with vitiligo?
Many celebrities have dealt with vitiligo while remaining in the public eye, maintaining a positive outlook, and having a successful career. Here are a few courageous ...
Who is prone to vitiligo?
Vitiligo affects 0.5-2% of the population, and occurs in all races and all social levels. Vitiligo can affect people of all ages, but often starts between the ages of ...
What tests should be done?
No tests are usually necessary to make the diagnosis. The white patches may be seen more easily under Wood's light examination.