At the VR Foundation we have put forward a clear vision for the standardization of vitiligo medical records, clinical data points and biosample collection procedures.
Our current efforts to implement vitiligo health data standards are driven by issues related to the quality, cost and applicability of existing therapies, patient safety concerns, and our desire to see clinical research findings implemented in clinic as quickly as possible.
Currently, it is easier to collect data on vitiligo patients for prospective clinical trials in advance than it is to access similar clinical data retrospectively. We recommend using the anonymous electronic patient record built in to the Vitiligo CloudBank to participate in collaboration, grants and other programs supported by the VRF.
Alternatively, you can download and use these traditional paper-based forms :
Please be aware that the Vitiligo Patient Record is not a traditional form to be filled out - it actually refers to the variables to be collected and the format they should take. Doctors can make adjustments based on specific needs and add more fields if necessary. We expect the recommended data set will be collected as part of routine primary and follow-up visits.
If you have any questions regarding patient data and the collection of data, please contact us.
I support the petition to designate June 25 as Vitiligo World Day and save millions of people worldwide from social isolation and persecution.
What is coming?
XXIII Master Class in Cuba
will be held as a part of INDERCOS Winter Meeting, in collaboration with Cuban Vitiligo Support and Research Group. International and national expert speakers will di...16 November 2017 09:00, Hotel Nacional de Cuba, Habana, Cuba
High-level Meeting on the Asian and Pacific Decade of People With Disabilities
The UN's Economic and Social Commission for Asia and the Pacific (ESCAP), in cooperation with the China Disabled Persons’ Federation (CDPF), is organizing the High-lev...27 November 2017 09:00, Beijing, China
How can I cure vitiligo?
There is no cure for vitiligo, but there are a number of effective treatment options that can be discussed with your GP or dermatologist. The aim of treatment is to st...
Can Ginkgo Biloba help with vitiligo?
Ginkgo Biloba extract seems to be a simple, safe and fairly effective therapy for arresting the progression of the vitiligo. Ginkgo Biloba is known to have anti-inflam...
I have a new job - should I tell colleagues about my vitiligo?
If you are starting a new job and you are concerned about stares and questions about your skin, try a proactive approach. When the time is right and you are feeling co...
Is there a special diet for vitiligo?
We have specifically looked into claims that some food supplements or special diet may ease symptoms of vitiligo, or completely reverse it, and found no firm scientifi...