Patient Records

At the VR Foundation we have put forward a clear vision for the standardization of vitiligo medical records, clinical data points and biosample collection procedures. 

Vitiligo Cloud Bank Patient Record   0

Our current efforts to implement vitiligo health data standards are driven by issues related to the quality, cost and applicability of existing therapies, patient safety concerns, and our desire to see clinical research findings implemented in clinic as quickly as possible.

Currently, it is easier to collect data on vitiligo patients for prospective clinical trials in advance than it is to access similar clinical data retrospectively. We recommend using the anonymous electronic patient record built in to the Vitiligo CloudBank to participate in collaboration, grants and other programs supported by the VRF.

Alternatively, you can download and use these traditional paper-based forms :

Vitiligo Patient Record - Primary Visit (pdf)

Vitiligo Patient Record - FollowUp Visit (pdf)

Please be aware that the Vitiligo Patient Record is not a traditional form to be filled out - it actually refers to the variables to be collected and the format they should take. Doctors can make adjustments based on specific needs and add more fields if necessary. We expect the recommended data set will be collected as part of routine primary and follow-up visits.

Guidelines

Guidelines For Data Collection (pdf)

Guidelines For Blood&Serum Collection (pdf)

Informed Consent Standard Form (pdf)

If you have any questions regarding patient data and the collection of data, please contact us.

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