VRF Presentations and Workshops
Throughout the year, the VRF has been delivering a series of workshops, lectures and presentations that focus very much on the seen and unseen challenges of the non-profit drug development for vitiligo and other neglected diseases.
Our most recent presentations are:
- “A Multidisciplinary Approach to Expedited Drug Development For Vitiligo, a Neglected Autoimmune Disease” and
- “Cloud Bank - a Disease-Specific EMR and Patient Registry for Expedited R&D” (Haikou, China; November 14-15, 2013)
- “New Patient Engagement Tools for Pre-Clinical R&D and Medical Practice (Florence, Italy; November 10, 2013.)
CEO VR Foundation Yan Valle has provided the diverse audience with invaluable insights into the new trend of disease-specific non-profits actively engaged in drug discovery, their key drivers and day-to-day challenges. He was able to explain VRF’s low budget, multidisciplinary approach to the new therapy development for vitiligo.
Yan also gave a realistic perspective on the new Patient Engagement Tools developed by the team, and also demonstrated that Vitiligo Cloud Bank can be to the benefit of both patients the dermatological practice.
The presentations and discussion sparked many questions – one very pertinent point about privacy and security of electronic health records. Yan has stressed out that VRF's anonymous database is by default more secure from leaks and data theft than traditional with key ID data points.
Much has been covered in 2013 and much will continue to be presented soon as VRF struggles to develop a therapy for vitiligo.
27th International Laser Florence Congress, Italy
3rd Annual World Congress of MolMed -2013 in Haikou, China
I support the petition to designate June 25 as Vitiligo World Day and save millions of people worldwide from social isolation and persecution.
What is coming?
Master Class On Vitiligo In Pediatric Age
will be held alongside “International Forum on Paediatric Dermatology”, which will take place in Rome (Italy), on October 5-7, 2017. This is an exciting opportunity t...06 October 2017 09:00, P.zza Giovanni Randaccio, 1 - Rome...
Master Class On Vitiligo alongside the World Congress Of Dermatology
The Italian Society of Dermatology will host the 24th World Congress of Dermatology in Milan, Italy, under the auspices of the International League of Dermatological ...10 June 2019 09:00, Milan, Italy
How long does it take to treat vitiligo?
Treatment results will vary by person and type of vitiligo. The rule of thumb is that you will need to allow at least 3 to 6 months before you begin to see results fro...
I have vitiligo: will my children have vitiligo, too?
In some cases vitiligo seems to be inherited and run in families, with children whose parents have vitiligo being at increased risk of developing the condition themsel...
What tests should be done?
No tests are usually necessary to make the diagnosis. The white patches may be seen more easily under Wood's light examination.
What is vitiligo?
Vitiligo (pronounced vit-ill-EYE-go) is a relatively common skin disease characterized by smooth, white, painless spots or patches on various parts of the body. It doe...