VRF Presentations and Workshops
Throughout the year, the VRF has been delivering a series of workshops, lectures and presentations that focus very much on the seen and unseen challenges of the non-profit drug development for vitiligo and other neglected diseases.
Our most recent presentations are:
- “A Multidisciplinary Approach to Expedited Drug Development For Vitiligo, a Neglected Autoimmune Disease” and
- “Cloud Bank - a Disease-Specific EMR and Patient Registry for Expedited R&D” (Haikou, China; November 14-15, 2013)
- “New Patient Engagement Tools for Pre-Clinical R&D and Medical Practice (Florence, Italy; November 10, 2013.)
CEO VR Foundation Yan Valle has provided the diverse audience with invaluable insights into the new trend of disease-specific non-profits actively engaged in drug discovery, their key drivers and day-to-day challenges. He was able to explain VRF’s low budget, multidisciplinary approach to the new therapy development for vitiligo.
Yan also gave a realistic perspective on the new Patient Engagement Tools developed by the team, and also demonstrated that Vitiligo Cloud Bank can be to the benefit of both patients the dermatological practice.
The presentations and discussion sparked many questions – one very pertinent point about privacy and security of electronic health records. Yan has stressed out that VRF's anonymous database is by default more secure from leaks and data theft than traditional with key ID data points.
Much has been covered in 2013 and much will continue to be presented soon as VRF struggles to develop a therapy for vitiligo.
27th International Laser Florence Congress, Italy
3rd Annual World Congress of MolMed -2013 in Haikou, China
I support the petition to designate June 25 as Vitiligo World Day and save millions of people worldwide from social isolation and persecution.
What is coming?
Expert Answers Most Frequently Asked Questions about Vitiligo
Join us for a Live Facebook event with Erika Page from Living Dappled. We'll bust common myths about vitiligo and answer your most frequently asked questions. Date: J...25 January 2018 12:00, Facebook Live
First NY Vitiligo Community Group meeting of 2018
will be on Thursday, February 8th, from 7PM - 8:30PM on the 11th floor of NYU's Ambulatory Care Center at 240 East 38th Street, between 2nd and 3rd Avenue Since this ...08 February 2018 07:00, NYU's Ambulatory Care Center at 24...
Dermaroller® use for vitiligo therapy
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How can I cure vitiligo?
There is no cure for vitiligo, but there are a number of effective treatment options that can be discussed with your GP or dermatologist. The aim of treatment is to st...
Is there a special diet for vitiligo?
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