VRF Presentations and Workshops
Throughout the year, the VRF has been delivering a series of workshops, lectures and presentations that focus very much on the seen and unseen challenges of the non-profit drug development for vitiligo and other neglected diseases.
Our most recent presentations are:
- “A Multidisciplinary Approach to Expedited Drug Development For Vitiligo, a Neglected Autoimmune Disease” and
- “Cloud Bank - a Disease-Specific EMR and Patient Registry for Expedited R&D” (Haikou, China; November 14-15, 2013)
- “New Patient Engagement Tools for Pre-Clinical R&D and Medical Practice (Florence, Italy; November 10, 2013.)
CEO VR Foundation Yan Valle has provided the diverse audience with invaluable insights into the new trend of disease-specific non-profits actively engaged in drug discovery, their key drivers and day-to-day challenges. He was able to explain VRF’s low budget, multidisciplinary approach to the new therapy development for vitiligo.
Yan also gave a realistic perspective on the new Patient Engagement Tools developed by the team, and also demonstrated that Vitiligo Cloud Bank can be to the benefit of both patients the dermatological practice.
The presentations and discussion sparked many questions – one very pertinent point about privacy and security of electronic health records. Yan has stressed out that VRF's anonymous database is by default more secure from leaks and data theft than traditional with key ID data points.
Much has been covered in 2013 and much will continue to be presented soon as VRF struggles to develop a therapy for vitiligo.
27th International Laser Florence Congress, Italy
3rd Annual World Congress of MolMed -2013 in Haikou, China
I support the petition to designate June 25 as Vitiligo World Day and save millions of people worldwide from social isolation and persecution.
What is coming?
NY Vitiligo Community Meeting in September
Our next meeting will be on Thursday, September 21st, at 7PM - 8:30PM on the 11th floor of NYU's Ambulatory Care Center at 240 East 38th Street, between 2nd and 3rd Av...21 September 2017 19:00, 11th floor of NYU's Ambulatory Car...
Vitiligo Advocacy Day at the US Capitol
Save-the-Date for the much anticipated Vitiligo Advocacy Day at the United States Capitol this fall. As many of you know, the Advocacy Committee of the Global Vitilig...04 October 2017 10:00, Washington, DC
What is vitiligo?
Vitiligo (pronounced vit-ill-EYE-go) is a relatively common skin disease characterized by smooth, white, painless spots or patches on various parts of the body. It doe...
Can Ginkgo Biloba help with vitiligo?
Ginkgo Biloba extract seems to be a simple, safe and fairly effective therapy for arresting the progression of the vitiligo. Ginkgo Biloba is known to have anti-inflam...
Is there a traditional medicine to treat vitiligo?
During the last decades, new methods of therapeutic research, ethno-botany and ethno-pharmacology and even archeo-pharmacology (PubMed), have been used extensively to ...
What causes vitiligo?
The precise cause of vitiligo is not well understood. The white areas appear due to loss of the pigment (melanin) that gives skin its color and protects it from the su...