VRF Presentations and Workshops
Throughout the year, the VRF has been delivering a series of workshops, lectures and presentations that focus very much on the seen and unseen challenges of the non-profit drug development for vitiligo and other neglected diseases.
Our most recent presentations are:
- “A Multidisciplinary Approach to Expedited Drug Development For Vitiligo, a Neglected Autoimmune Disease” and
- “Cloud Bank - a Disease-Specific EMR and Patient Registry for Expedited R&D” (Haikou, China; November 14-15, 2013)
- “New Patient Engagement Tools for Pre-Clinical R&D and Medical Practice (Florence, Italy; November 10, 2013.)
CEO VR Foundation Yan Valle has provided the diverse audience with invaluable insights into the new trend of disease-specific non-profits actively engaged in drug discovery, their key drivers and day-to-day challenges. He was able to explain VRF’s low budget, multidisciplinary approach to the new therapy development for vitiligo.
Yan also gave a realistic perspective on the new Patient Engagement Tools developed by the team, and also demonstrated that Vitiligo Cloud Bank can be to the benefit of both patients the dermatological practice.
The presentations and discussion sparked many questions – one very pertinent point about privacy and security of electronic health records. Yan has stressed out that VRF's anonymous database is by default more secure from leaks and data theft than traditional with key ID data points.
Much has been covered in 2013 and much will continue to be presented soon as VRF struggles to develop a therapy for vitiligo.
27th International Laser Florence Congress, Italy
3rd Annual World Congress of MolMed -2013 in Haikou, China
I support the petition to designate June 25 as Vitiligo World Day and save millions of people worldwide from social isolation and persecution.
What is coming?
VITFriends Fundraising and Awareness Concert in Boston
Featuring: M.C. - Mary-dith Tuitt Jazz vocalist - Katani Summer Steel drum instrumentalist - Justin Petty Vocalist - Emily Orji and Dr. Victor Huan...30 April 2017 14:30, Salvation Army Kroc Center, 650 Du...
Vitiligo Walk-A-Thon in Fort Dallas
The annual Vitiligo Walkathon is organized by Dallas Fort Worth Vitiligo Support Group on May 20, 2017. This is an event held to raise awareness about vitiligo in the...20 May 2017 09:00, Dallas, Texas
Can a gluten-free diet help with vitiligo?
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Can Scenesse be used for vitiligo treatment?
The drug Scenesse from Clinuvel has been tested in clinical trials in relation vitiligo. Profs. Henry Lim, Mark Lebwohl and coauthors reported (PubMed) results of mult...
Isn't it just a cosmetic disorder?
Like it or not, we live in a society where appearance matters. It should come as no surprise that vitiligo impacts on the psychological well-being and quality of life ...
I have vitiligo: will my children have vitiligo, too?
In some cases vitiligo seems to be inherited and run in families, with children whose parents have vitiligo being at increased risk of developing the condition themsel...