Media Release World Vitiligo Day
Did Michael Jackson want to be white? Did he bleach his skin? It's time for the truth to be told.
The truth about Michael is coming out on 25 June, the World Vitiligo Day.
It's the story Michael Jackson never told. The most famous entertainer in the world suffered from a disease called Vitiligo. And even after his death it's still one of the most misunderstood things about the king of pop. Vitiligo is a skin disorder that robs the body of it's pigment. It's the reason the most famous man on the planet went from black to white.
And Mr. Jackson was not alone. Well over 100 million people from all over the world suffer from this disease. It affects all nationalities, ages and genders, every level of social strata. One can find them in schools, hospitals, on TV and movies screens, sport arenas, and churches, while many went into seclusion and voluntary isolation from society.
Vitiligo is an acquired disease characterized by progressing skin depigmentation, due to destruction or malfunction of melanocytes, cells that produce melanin. It is present worldwide, and its prevalence in different countries ranges from less than 0.1% to more than 8% of general population (~1% in the United States and in Europe), while many cases go unreported due to the current dermatology practice.
Although vitiligo daily has destroyed the lives of millions of individuals since recorded history, predominantly in the developing world, there is no cure in sight. Few diseases give rise to more fear and loathing than vitiligo, especially in dark-skinned people, in whom it can be strikingly prominent. And because it is not contagious or life-threatening, patients often receive no support from national healthcare systems or insurance companies whatsoever.
The World Vitiligo Day is a public initiative aimed at building global awareness about vitiligo. Its ambitious goal is to raise 500,000 signatures to address the United Nations in order to recognize this neglected and debilitating disease. The choice of this particular day is a memorial to the popular artist Michael Jackson, who suffered from vitiligo since 1986 until his death, occurred on June 25, 2009.
This idea was first nursed by Steve Haragadon, the founder of the Vitiligo Friends network, and further developed by Ogo Maduewesi, the founder of the Vitiligo Support and Awareness Foundation (VITSAF) from Nigeria. In early 2012, VR Foundation, a non-profit organization squarely focused on vitiligo research, has joined the group to boost and to coordinate this mass-collaboration campaign. All activities are now united on the website www.25June.org.
What is the VR Foundation?
Firmly committed to curing Vitiligo, the VR Foundation is a non-profit organization funding and fast-tracking medical research across the biomedical spectrum. With bio-IT tools, it provides a collaborative an environment to bridge the gap between scientific frontiers and the patients who need treatment. The VRF has recently joined a group of biotech companies that are bypassing traditional mass-market cosmetic and orphan drug development indications to expedite product development.
[Local vitiligo support groups bio here]
I support the petition to designate June 25 as Vitiligo World Day and save millions of people worldwide from social isolation and persecution.
What is coming?
New York Vitiligo Community Meeting
Our next meeting will be after the World Vitiligo Day conference in Detroit on Thursday, July 20th, 2017, at 7PM - 8:30PM on the 11th floor of NYU's Ambulatory Care Ce...20 July 2017 19:00, 240 East 38th Street, New York, NY
Master Class On Vitiligo In Pediatric Age
will be held alongside “International Forum on Paediatric Dermatology”, which will take place in Rome (Italy), on October 5-7, 2017. This is an exciting opportunity t...06 October 2017 09:00, P.zza Giovanni Randaccio, 1 - Rome...
How to get insurance coverage for vitiligo treatments?
Most of health insurance companies will initially reject claims for vitiligo doctor visits or phototherapy treatments but with enough efforts you can have a substantia...
I have vitiligo: will my children have vitiligo, too?
In some cases vitiligo seems to be inherited and run in families, with children whose parents have vitiligo being at increased risk of developing the condition themsel...
What tests should be done?
No tests are usually necessary to make the diagnosis. The white patches may be seen more easily under Wood's light examination.
Is vitiligo contagious?
Vitiligo is NOT contagious. It cannot be passed on or caught from touching someone with vitiligo, shaking hands, swimming in the same pool, sharing towels, sitting nex...