Firmly committed to curing vitiligo, the Vitiligo Research Foundation is a registered 501(c)3 non-profit organization, funding and fast-tracking medical research globally. Our mission is to develop effective treatments for millions of people around the world who suffer from vitiligo.
The foundation was born from the determination of one man - Dmitry Aksenov - to help his daughter, who was diagnosed with this debilitating skin disease at an early age.
After years of trying, and failing, to find an effective treatment for his daughter Dmitry realized something was wrong as vitiligo wasn’t getting the attention it deserved from the research community, because the money was not there to support projects.
Determined to change this, Dmitry decided to take up the fight himself and established the Vitiligo Research Foundation in 2010 – a non-profit organization with a remit to transcend national borders by funding and instigating vitiligo research across the world. Continue reading Our Story
We maintain a small but highly-qualified professional staff, supplemented by a global network of unpaid experts and opinion leaders in the field of vitiligo, who help us in many ways. This operating model allows us to minimize operating expenses and ensure as much money as possible is poured into the battle against vitiligo.
MANAGEMENT TEAM with a diverse set of skills and backgrounds is working for a common cause – to find a cure for vitiligo and make a difference in the lives of vitiligo patients.
BOARD OF DIRECTORS brings the rigor and efficiency of the leadership world into the vitiligo campaign. The board is comprised of leaders in scientific research, business, media and non-profit who provide strategic oversight and ensure our mission stays targeted and on track.
SCIENTIFIC ADVISORY BOARD is comprised of leading vitiligo researchers and practitioners, as well as experts in related fields, including genetics, immunology and drug development.
We are a small organization with a big reach. From our New York office we manage an international program of research and outreach projects, all centered on finding a cure for vitiligo and helping those with the disease.
We believe that to make a real difference we need to do things differently from the way disease research is currently conducted:
- We monitor everything that is happening in the vitiligo field across the world. We monitor academic research, clinical practice, trials, products - from traditional medicine to the pharmaceutical pipeline - as well as social events and support activities.
- We develop and fund the most promising research programs. We channel resources to the world’s top scientific minds—cutting red tape and encouraging collaboration, to speed breakthroughs.
- We support outreach programs across the world that educate and inform people about vitiligo. These include master-classes for doctors, collaboration programs and World Vitiligo Day.
We have gone from strength to strength and it is our ongoing mission to develop effective treatments to help the millions of people around the world who suffer from vitiligo.
Your donation enables us to support vitiligo research and community projects across the world. This money has enabled us to do some amazing things, such as:
- Launch and fund the World Vitiligo Day, a global happening on June 25 each year, and put it on the United Nations' calendar.
- Fund research that is striving to find a cure for vitiligo.
- Create the specialized bio-IT system and global network of vitiligo biobanks.
- Fund and help numerous vitiligo support groups in the Americas, Africa, Asia and Europe.
- Write over 50 articles, reviews and other papers, Q&A and books in seven languages.
- Host Vitiligo Master-Classes and conferences in eleven countries.
- Create an open World Vitiligo Directory and Map.
We are 100% funded by donations, so without your support we would simply cease to exist. To ensure we continue the fight against vitiligo, please donate today.
I support the petition to designate June 25 as Vitiligo World Day and save millions of people worldwide from social isolation and persecution.
What is coming?
Expert Answers Most Frequently Asked Questions about Vitiligo
Join us for a Live Facebook event with Erika Page from Living Dappled. We'll bust common myths about vitiligo and answer your most frequently asked questions. Date: J...25 January 2018 12:00, Facebook Live
First NY Vitiligo Community Group meeting of 2018
will be on Thursday, February 8th, from 7PM - 8:30PM on the 11th floor of NYU's Ambulatory Care Center at 240 East 38th Street, between 2nd and 3rd Avenue Since this ...08 February 2018 07:00, NYU's Ambulatory Care Center at 24...
What is vitiligo?
Vitiligo (pronounced vit-ill-EYE-go) is a relatively common skin disease characterized by smooth, white, painless spots or patches on various parts of the body. It doe...
I have a new job - should I tell colleagues about my vitiligo?
If you are starting a new job and you are concerned about stares and questions about your skin, try a proactive approach. When the time is right and you are feeling co...
What causes vitiligo?
The precise cause of vitiligo is not well understood. The white areas appear due to loss of the pigment (melanin) that gives skin its color and protects it from the su...