VRF - VSI Collaboration Discussed at the AAD
Yan Valle, VR Foundation CEO and Jackie Gardner, Executive Director of Vitiligo Support International, have discussed the current state of vitiligo affairs and collaboration at the AAD Annual Meeting in San Francisco.
Vitiligo patients, physicians, researchers all need better outcomes. Getting to better outcomes doesn’t necessarily mean better drugs, but rather it means better patient-centered measures to enhance research and treatment. Outcomes measures don’t take into account all aspects of vitiligo, they need distinguishing which treatments and doctors add extra value. While there has been dramatic progress in vitiligo research, gaps remain. Key questions include the ability to predict who will develop vitiligo, and the ability to predict which patients will respond to which therapies.
Vitiligo non-treatment, under-treatment, and treatment dissatisfaction remain a significant problem in the United States and worldwide. Setting a clear target, like percent of re-pigmentation as a result of the treatment, seems like a simple task, but the reality is far more complex. Multiple stakeholders in vitiligo — patients, doctors, researchers, and insurance companies — all have their own goals, priorities, and questions of interest. VR Foundation and VSI will continue bridging mutual interests and enhance collaboration in order to achieve better outcomes in vitiligo.
I support the petition to designate June 25 as Vitiligo World Day and save millions of people worldwide from social isolation and persecution.
What is coming?
Expert Answers Most Frequently Asked Questions about Vitiligo
Join us for a Live Facebook event with Erika Page from Living Dappled. We'll bust common myths about vitiligo and answer your most frequently asked questions. Date: J...25 January 2018 12:00, Facebook Live
First NY Vitiligo Community Group meeting of 2018
will be on Thursday, February 8th, from 7PM - 8:30PM on the 11th floor of NYU's Ambulatory Care Center at 240 East 38th Street, between 2nd and 3rd Avenue Since this ...08 February 2018 07:00, NYU's Ambulatory Care Center at 24...
Pyrostegia venusta as a folk medicine for vitiligo?
Pyrostegia venusta is a neotropical evergreen vine widely spread in Brazil throughout fields, at the coast, edge of the woods and along roadsides (see photo below). Po...
What causes vitiligo?
Surprisingly, the causes of vitiligo are yet to be precisely established. Researchers know the cause is pre-wired in your genes, just waiting for a bad luck momen...
How long does it take to treat vitiligo?
Treatment results will vary by person and type of vitiligo. The rule of thumb is that you will need to allow at least 3 to 6 months before you begin to see results fro...