VRF - VSI Collaboration Discussed at the AAD
Yan Valle, VR Foundation CEO and Jackie Gardner, Executive Director of Vitiligo Support International, have discussed the current state of vitiligo affairs and collaboration at the AAD Annual Meeting in San Francisco.
Vitiligo patients, physicians, researchers all need better outcomes. Getting to better outcomes doesn’t necessarily mean better drugs, but rather it means better patient-centered measures to enhance research and treatment. Outcomes measures don’t take into account all aspects of vitiligo, they need distinguishing which treatments and doctors add extra value. While there has been dramatic progress in vitiligo research, gaps remain. Key questions include the ability to predict who will develop vitiligo, and the ability to predict which patients will respond to which therapies.
Vitiligo non-treatment, under-treatment, and treatment dissatisfaction remain a significant problem in the United States and worldwide. Setting a clear target, like percent of re-pigmentation as a result of the treatment, seems like a simple task, but the reality is far more complex. Multiple stakeholders in vitiligo — patients, doctors, researchers, and insurance companies — all have their own goals, priorities, and questions of interest. VR Foundation and VSI will continue bridging mutual interests and enhance collaboration in order to achieve better outcomes in vitiligo.
I support the petition to designate June 25 as Vitiligo World Day and save millions of people worldwide from social isolation and persecution.
What is coming?
The Step Up for Vitiligo Gala
Dallas-Fort Worth Vitiligo Support Group is organizing 'The Step Up for Vitiligo Gala' which will take place on April 28th in Austin, Texas at UT-Austin. Dr. Ammar Ah...28 April 2018 12:00, Austin, Texas at UT-Austin
11th session of the Conference of States Parties to the CRPD
The 11th session Convention on the Rights of Persons with Disabilities (CRPD) will take place at the United Nations Headquarters, New York, from 12 to 14 June 2018. Mo...12 June 2018 09:00, UN Plaza, New York
What is vitiligo?
Vitiligo (pronounced vit-ill-EYE-go) is a relatively common skin disease characterized by smooth, white, painless spots or patches on various parts of the body and hai...
Why there is no drug for vitiligo yet?
Despite the dearth of medications available to treat psoriasis - a disease with similar prevalence numbers and impact on quality of life - vitiligo has no known cure o...
Can chemicals cause vitiligo?
It’s important to remember there are multiple factors involved in vitiligo onset, including genetic predisposition, living and working environments, and exposure to ce...