The creation of the non-profit VR Foundation was inspired by an active teen-age girl who was diagnosed with vitiligo at an early age. When her father, Dmitry Aksenov, discovered that there was no effective treatment for vitiligo, he set out to expedite therapy development for this debilitating skin disease.
Although, thus far, his life experience had not focused on medical research or biotech, after years of searching for treatment, he came to realize that the inefficiency of existing treatments is a direct result of the lack of funding for vitiligo research. The poor state of funding also discourages new researchers who, instead, gravitate to where the money is, leaving a potential gaping hole in future vitiligo research programs.
Mr. Dmitry Aksenov had for many years donated to a variety of social and humanitarian causes – but the establishment of the VR Foundation in 2010 was his first major contribution to the field of medical research. Working with best researchers, Dmitry has seen how researchers are trying diligently to unlock the secrets unique to this skin disease. Many areas are still left under-investigated.
Foundation's CEO Yan Valle, who has been living with vitiligo for over 30 years, is now using his cross-border knowledge of IT and healthcare to reform a system for medical research and drug development that has failed to produce new patient treatments for millions living with this debilitating disease.
I support the petition to designate June 25 as Vitiligo World Day and save millions of people worldwide from social isolation and persecution.
What is coming?
NY Vitiligo Community Meeting in September
Our next meeting will be on Thursday, September 21st, at 7PM - 8:30PM on the 11th floor of NYU's Ambulatory Care Center at 240 East 38th Street, between 2nd and 3rd Av...21 September 2017 19:00, 11th floor of NYU's Ambulatory Car...
Vitiligo Advocacy Day at the US Capitol
Save-the-Date for the much anticipated Vitiligo Advocacy Day at the United States Capitol this fall. As many of you know, the Advocacy Committee of the Global Vitilig...04 October 2017 10:00, Washington, DC
Is it possible to stop the progression of vitiligo?
It is true that vitiligo progression could be stopped in 4 out of 5 cases by the use of potent systemic corticosteroids. However, systemic corticosteroids might ha...
Who is prone to vitiligo?
Vitiligo affects 0.5-2% of the population, and occurs in all races and all social levels. Vitiligo can affect people of all ages, but often starts between the ages of ...
I have vitiligo: will my children have vitiligo, too?
In some cases vitiligo seems to be inherited and run in families, with children whose parents have vitiligo being at increased risk of developing the condition themsel...
Pyrostegia venusta as a folk medicine for vitiligo?
Pyrostegia venusta is a neotropical evergreen vine widely spread in Brazil throughout fields, at the coast, edge of the woods and along roadsides (see photo below). Po...