The creation of the non-profit VR Foundation was inspired by an active teen-age girl who was diagnosed with vitiligo at an early age. When her father, Dmitry Aksenov, discovered that there was no effective treatment for vitiligo, he set out to expedite therapy development for this debilitating skin disease.
Although, thus far, his life experience had not focused on medical research or biotech, after years of searching for treatment, he came to realize that the inefficiency of existing treatments is a direct result of the lack of funding for vitiligo research. The poor state of funding also discourages new researchers who, instead, gravitate to where the money is, leaving a potential gaping hole in future vitiligo research programs.
Mr. Dmitry Aksenov had for many years donated to a variety of social and humanitarian causes – but the establishment of the VR Foundation in 2010 was his first major contribution to the field of medical research. Working with best researchers, Dmitry has seen how researchers are trying diligently to unlock the secrets unique to this skin disease. Many areas are still left under-investigated.
Foundation's CEO Yan Valle, who has been living with vitiligo for over 30 years, is now using his cross-border knowledge of IT and healthcare to reform a system for medical research and drug development that has failed to produce new patient treatments for millions living with this debilitating disease.
I support the petition to designate June 25 as Vitiligo World Day and save millions of people worldwide from social isolation and persecution.
What is coming?
United Nations ECOSOC session
The tenth session of the Conference of States Parties to the Convention on the Rights of Persons with Disabilities (CRPD) will take place from Tuesday 13 to Thursday ...13 June 2017 10:00, UN Plaza, New York
World Vitiligo Day celebration conference in Detroit, USA
U.S. World Vitiligo Day 2017 Theme: "Step Up for Vitiligo: A Call for Truth, Hope and Change!" Reflecting the mission of the “Step Up for Vitiligo” campaign that came...23 June 2017 18:00, Detroit, Michigan, USA
What tests should be done?
No tests are usually necessary to make the diagnosis. The white patches may be seen more easily under Wood's light examination.
Who is prone to vitiligo?
Vitiligo affects 0.5-2% of the population, and occurs in all races and all social levels. Vitiligo can affect people of all ages, but often starts between the ages of ...
I have a new job - should I tell colleagues about my vitiligo?
If you are starting a new job and you are concerned about stares and questions about your skin, try a proactive approach. When the time is right and you are feeling co...
Is vitiligo contagious?
Vitiligo is NOT contagious. It cannot be passed on or caught from touching someone with vitiligo, shaking hands, swimming in the same pool, sharing towels, sitting nex...