The creation of the non-profit VR Foundation was inspired by an active teen-age girl who was diagnosed with vitiligo at an early age. When her father, Dmitry Aksenov, discovered that there was no effective treatment for vitiligo, he set out to expedite therapy development for this debilitating skin disease.
Although, thus far, his life experience had not focused on medical research or biotech, after years of searching for treatment, he came to realize that the inefficiency of existing treatments is a direct result of the lack of funding for vitiligo research. The poor state of funding also discourages new researchers who, instead, gravitate to where the money is, leaving a potential gaping hole in future vitiligo research programs.
Mr. Dmitry Aksenov had for many years donated to a variety of social and humanitarian causes – but the establishment of the VR Foundation in 2010 was his first major contribution to the field of medical research. Working with best researchers, Dmitry has seen how researchers are trying diligently to unlock the secrets unique to this skin disease. Many areas are still left under-investigated.
Foundation's CEO Yan Valle, who has been living with vitiligo for over 30 years, is now using his cross-border knowledge of IT and healthcare to reform a system for medical research and drug development that has failed to produce new patient treatments for millions living with this debilitating disease.
I support the petition to designate June 25 as Vitiligo World Day and save millions of people worldwide from social isolation and persecution.
What is coming?
XXIII Master Class in Cuba
will be held as a part of INDERCOS Winter Meeting, in collaboration with Cuban Vitiligo Support and Research Group. International and national expert speakers will di...16 November 2017 09:00, Hotel Nacional de Cuba, Habana, Cuba
High-level Meeting on the Asian and Pacific Decade of People With Disabilities
The UN's Economic and Social Commission for Asia and the Pacific (ESCAP), in cooperation with the China Disabled Persons’ Federation (CDPF), is organizing the High-lev...27 November 2017 09:00, Beijing, China
Who is prone to vitiligo?
Vitiligo affects 0.5-2% of the population, and occurs in all races and all social levels. Vitiligo can affect people of all ages, but often starts between the ages of ...
Pyrostegia venusta as a folk medicine for vitiligo?
Pyrostegia venusta is a neotropical evergreen vine widely spread in Brazil throughout fields, at the coast, edge of the woods and along roadsides (see photo below). Po...
Can Scenesse be used for vitiligo treatment?
The drug Scenesse from Clinuvel has been tested in clinical trials in relation vitiligo. Profs. Henry Lim, Mark Lebwohl and coauthors reported (PubMed) results of mult...
Are there any famous people with vitiligo?
Many celebrities have dealt with vitiligo while remaining in the public eye, maintaining a positive outlook, and having a successful career. Here are a few courageous ...