Newsletter October 2016
A monthly dose of good news from VR Foundation was sent out this past weekend. Read our current newsletter issue here below.
October 29, 2016
As winter approaches, here’s your latest batch of news from VR Foundation.
And with winter, so too comes the flu season. If you feel a cold coming on, it’s pointless to reach for the vitamin C tablets. Study after study has concluded that vitamin C won’t do anything for you. Many vitiligo patients actually say they are more resilient to colds and flu than others, which is one advantage of a hyperactive immune system, but getting a flu shot can still be a good idea.
But, if you are confined to your home by a bug, consider the effect your environment is having on your vitiligo. Worryingly, our homes are stuffed with products known to be potent triggers for vitiligo, yet bear no warning labels. I’m addressing this subject in a chapter of my upcoming book, but in the meantime try exploring the Household Products Database to find out the potential health effects of 16,000 consumer brands. It could change your shopping habits forever.
I’m going to suggest some other reading matter as, just like a jigsaw puzzle, the pieces of the vitiligo pathogenome are finally beginning to fit together. This is detailed in the latest edition of Nature Genetics, where Prof. Richard Spritz et al present results of the latest genome-wide study. Be warned, you may need a PhD in molecular biology or similar to enjoy reading this!
But here’s something everyone can read, enjoy and be inspired by – the story of Ashely Soto – a former cheerleader who, after years of hiding away and being bullied about her vitiligo, has taken to Instagram to celebrate her body.
Next, some advice from yours truly – as many of you are asking what I use for my own vitiligo. Well, over the summer I was taking Polipodium Leucotomas as a food supplement. It helps protect skin from damage caused by sun. In the fall, I’ve switched to Gingko Biloba with vipocentine for antioxidant protection; it’s also reputed to improve memory and brain function. If you are of an experimental mindset, try these - I don’t think you’ll be disappointed (but talk to you doc first, as always).
I must remind you about the combined XX Master Class on Vitiligo and 2nd Winter Consensus Conference in Rome on December 4th, where the theme is ‘Working Towards Common Action At The United Nations’. The Winter Consensus only takes place every four years and brings together vitiligo experts from across the world, so is well worth attending. Registration is free (for that reason we can’t sponsor speakers) and I invite you to join us and decide upon the future of the vitiligo community. Check out the preliminary program here.
Is there anything particular you’d like to see covered in the newsletter? Or a theme you’d like to read more – or less - about? If so, please let me know – I’d love to hear from you.
And, if you are enjoying these newsletters, please forward this email to a friend and suggest they sign up. The more people we reach the better!
With my best wishes.
PS – As I alluded to earlier, I’m writing a book. It’s called "The No-Nonsense Guide To Vitiligo" and will be followed by "10 Protocols For Vitiligo Practitioners" from the best clinicians in the field. If you’d like to read these before the official publication, let me know and I’ll put your name on the pre-release list.
I support the petition to designate June 25 as Vitiligo World Day and save millions of people worldwide from social isolation and persecution.
What is coming?
NY Vitiligo Community Meeting in September
Our next meeting will be on Thursday, September 21st, at 7PM - 8:30PM on the 11th floor of NYU's Ambulatory Care Center at 240 East 38th Street, between 2nd and 3rd Av...21 September 2017 19:00, 11th floor of NYU's Ambulatory Car...
Vitiligo Advocacy Day at the US Capitol
Save-the-Date for the much anticipated Vitiligo Advocacy Day at the United States Capitol this fall. As many of you know, the Advocacy Committee of the Global Vitilig...04 October 2017 10:00, Washington, DC
Is there a special diet for vitiligo?
We have specifically looked into claims that some food supplements or special diet may ease symptoms of vitiligo, or completely reverse it, and found no firm scientifi...
Can Ginkgo Biloba help with vitiligo?
Ginkgo Biloba extract seems to be a simple, safe and fairly effective therapy for arresting the progression of the vitiligo. Ginkgo Biloba is known to have anti-inflam...
How to get insurance coverage for vitiligo treatments?
Most of health insurance companies will initially reject claims for vitiligo doctor visits or phototherapy treatments but with enough efforts you can have a substantia...
What causes vitiligo?
The precise cause of vitiligo is not well understood. The white areas appear due to loss of the pigment (melanin) that gives skin its color and protects it from the su...