CloudBank is the first bio-IT system and Electronic Health Record developed specifically for vitiligo. It allows patients to register anonymously online, record symptoms and treatment outcomes. Doctors can securely communicate with patients, monitor disease progression and evaluate outcomes, in order to get better treatment results. Researchers can analyze aggregated data sets for clues that may lead to a better understanding of the disease and ultimately develop a cure for vitiligo.
The main purpose of Vitiligo CloudBank is to collect enough data on vitiligo to make it visible and to motivate researchers and bio-pharma industry to work on it.
From a research standpoint, CloudBank is a bio-informatics system that serves as a platform for integrating anonymous data from health records, biobanks and laboratories. It condenses large volumes of research-quality data, enabling investigators to analyze multiple profiles, treatments and lab results. The anonymous information in this database allows scientists to research the causes of vitiligo, recognize the most effective existing treatments, and helps them design clinical trials for potential therapies.
This portal looks much like an electronic health record, but the similarities end there. Traditional electronic health record systems are designed to manage clinical data and to help optimize insurance company billing, but they are not useful in advancing medical research, particularly in the case of under-investigated diseases such as vitiligo.
The CloudBank is compliant with HIPAA and Meaningful Use Level 1 requirements. The CloudBank service is free for all academic vitiligo researchers and vitiligo patients, sponsored by the VRF.
Start your own vitiligo health record, enter Vitiligo CloudBank now >>>
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What is coming?
XXIII Master Class in Cuba
will be held as a part of INDERCOS Winter Meeting, in collaboration with Cuban Vitiligo Support and Research Group. International and national expert speakers will di...16 November 2017 09:00, Hotel Nacional de Cuba, Habana, Cuba
High-level Meeting on the Asian and Pacific Decade of People With Disabilities
The UN's Economic and Social Commission for Asia and the Pacific (ESCAP), in cooperation with the China Disabled Persons’ Federation (CDPF), is organizing the High-lev...27 November 2017 09:00, Beijing, China
Isn't it just a cosmetic disorder?
Like it or not, we live in a society where appearance matters. It should come as no surprise that vitiligo impacts on the psychological well-being and quality of life ...
Can Scenesse be used for vitiligo treatment?
The drug Scenesse from Clinuvel has been tested in clinical trials in relation vitiligo. Profs. Henry Lim, Mark Lebwohl and coauthors reported (PubMed) results of mult...
Is vitiligo contagious?
Vitiligo is NOT contagious. It cannot be passed on or caught from touching someone with vitiligo, shaking hands, swimming in the same pool, sharing towels, sitting nex...
Who is prone to vitiligo?
Vitiligo affects 0.5-2% of the population, and occurs in all races and all social levels. Vitiligo can affect people of all ages, but often starts between the ages of ...