How We Work

We are a small organization with a big reach. From our New York office we manage an international program of clinical and academic research and outreach projects, all centered on finding a cure for vitiligo and helping those with the disease.

We believe that to make a real difference we need to do things differently from the way disease research is currently conducted.

These are the types of problems we want to avoid:

  • Poor communication within the research community. Competition between scientists for funding and publications severely limits opportunities for coordination and collaboration.
  • Lack of specialization. Research scientists specialize by scientific discipline (i.e. genetics, immunology, etc.) and seek funding by relating this discipline to the disease, rather than specializing by disease. 
  • Experiments designed to answer a hypothesis rather than address a specific problem relative to treatment of a disease. 
  • Lack of a research roadmap. When there is no overall strategy for research into a disease, investigators all too often pursue experiments based solely on their own scientific interests, leading to a lack of cohesion.
  • Lack of intellectual property protection. Biopharma companies are investing in "patentable" solutions, but scientific discoveries often lack patent protection needed for their commercial exploitation.
We are determined that vitiligo research should buck the trend of ineffective, disorganized research. Here’s how we are doing things differently:
  • We monitor everything that is happening in the vitiligo field across the world. We monitor academic research, clinical practice, trials, products - from traditional medicine to the pharmaceutical pipeline - as well as social events and support activities.
  • We develop and fund the most promising research programs. We channel resources to the world’s top scientific minds—cutting red tape and encouraging collaboration, to speed breakthroughs.
Please back us in the fight against vitiligo by donating today.
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