How We Work
We are a small organization with a big reach. From our New York office we manage an international program of clinical and academic research and outreach projects, all centered on finding a cure for vitiligo and helping those with the disease.
We believe that to make a real difference we need to do things differently from the way disease research is currently conducted.
These are the types of problems we want to avoid:
- Poor communication within the research community. Competition between scientists for funding and publications severely limits opportunities for coordination and collaboration.
- Lack of specialization. Research scientists specialize by scientific discipline (i.e. genetics, immunology, etc.) and seek funding by relating this discipline to the disease, rather than specializing by disease.
- Experiments designed to answer a hypothesis rather than address a specific problem relative to treatment of a disease.
- Lack of a research roadmap. When there is no overall strategy for research into a disease, investigators all too often pursue experiments based solely on their own scientific interests, leading to a lack of cohesion.
- Lack of intellectual property protection. Biopharma companies are investing in "patentable" solutions, but scientific discoveries often lack patent protection needed for their commercial exploitation.
- We monitor everything that is happening in the vitiligo field across the world. We monitor academic research, clinical practice, trials, products - from traditional medicine to the pharmaceutical pipeline - as well as social events and support activities.
- We develop and fund the most promising research programs. We channel resources to the world’s top scientific minds—cutting red tape and encouraging collaboration, to speed breakthroughs.
- We support outreach programs across the world that educate and inform people about vitiligo. These include master-classes for doctors, collaboration programs and World Vitiligo Day.
I support the petition to designate June 25 as Vitiligo World Day and save millions of people worldwide from social isolation and persecution.
What is coming?
XXIII Master Class in Cuba
will be held as a part of INDERCOS Winter Meeting, in collaboration with Cuban Vitiligo Support and Research Group. International and national expert speakers will di...16 November 2017 09:00, Hotel Nacional de Cuba, Habana, Cuba
High-level Meeting on the Asian and Pacific Decade of People With Disabilities
The UN's Economic and Social Commission for Asia and the Pacific (ESCAP), in cooperation with the China Disabled Persons’ Federation (CDPF), is organizing the High-lev...27 November 2017 09:00, Beijing, China
Can a gluten-free diet help with vitiligo?
Gluten is the spongy complex of proteins found in wheat, rye and barley, which puffs up when baked with yeast. It is important to realize there are three different...
What's better: laser or phototherapy?
In a recent controlled study researchers assessed effect and safety of different laser and phototherapy treatments, such as excimer laser/light, narrowband UVB, UVA an...
Who is prone to vitiligo?
Vitiligo affects 0.5-2% of the population, and occurs in all races and all social levels. Vitiligo can affect people of all ages, but often starts between the ages of ...
What tests should be done?
No tests are usually necessary to make the diagnosis. The white patches may be seen more easily under Wood's light examination.