How We Work
We are a small organization with a big reach. From our New York office we manage an international program of clinical and academic research and outreach projects, all centered on finding a cure for vitiligo and helping those with the disease.
We believe that to make a real difference we need to do things differently from the way disease research is currently conducted.
These are the types of problems we want to avoid:
- Poor communication within the research community. Competition between scientists for funding and publications severely limits opportunities for coordination and collaboration.
- Lack of specialization. Research scientists specialize by scientific discipline (i.e. genetics, immunology, etc.) and seek funding by relating this discipline to the disease, rather than specializing by disease.
- Experiments designed to answer a hypothesis rather than address a specific problem relative to treatment of a disease.
- Lack of a research roadmap. When there is no overall strategy for research into a disease, investigators all too often pursue experiments based solely on their own scientific interests, leading to a lack of cohesion.
- Lack of intellectual property protection. Biopharma companies are investing in "patentable" solutions, but scientific discoveries often lack patent protection needed for their commercial exploitation.
- We monitor everything that is happening in the vitiligo field across the world. We monitor academic research, clinical practice, trials, products - from traditional medicine to the pharmaceutical pipeline - as well as social events and support activities.
- We develop and fund the most promising research programs. We channel resources to the world’s top scientific minds—cutting red tape and encouraging collaboration, to speed breakthroughs.
- We support outreach programs across the world that educate and inform people about vitiligo. These include master-classes for doctors, collaboration programs and World Vitiligo Day.
I support the petition to designate June 25 as Vitiligo World Day and save millions of people worldwide from social isolation and persecution.
What is coming?
VITFriends Fundraising and Awareness Concert in Boston
Featuring: M.C. - Mary-dith Tuitt Jazz vocalist - Katani Summer Steel drum instrumentalist - Justin Petty Vocalist - Emily Orji and Dr. Victor Huan...30 April 2017 14:30, Salvation Army Kroc Center, 650 Du...
Vitiligo Walk-A-Thon in Fort Dallas
The annual Vitiligo Walkathon is organized by Dallas Fort Worth Vitiligo Support Group on May 20, 2017. This is an event held to raise awareness about vitiligo in the...20 May 2017 09:00, Dallas, Texas
Dermaroller® use for vitiligo therapy
A derma-roller is a medical device that looks like a cylindrical shaped drum studded with very fine needles and is produced under several different names. It is used i...
Can a gluten-free diet help with vitiligo?
Gluten is the spongy complex of proteins found in wheat, rye and barley, which puffs up when baked with yeast. It is important to realize there are three different...
Are there any famous people with vitiligo?
Many celebrities have dealt with vitiligo while remaining in the public eye, maintaining a positive outlook, and having a successful career. Here are a few courageous ...
How to get insurance coverage for vitiligo treatments?
Most of health insurance companies will initially reject claims for vitiligo doctor visits or phototherapy treatments but with enough efforts you can have a substantia...