The Vitiligo BioBank is a non-profit collection of biological samples and detailed clinical data, designed to facilitate medical research into vitiligo.
The core asset of Vitiligo Biobank is a large collection of well-organized hair, blood, serum and DNA samples, integrated with comprehensive clinical records.
We collect and store large number of samples throughout the network of collaborators in 11 countries, using standard collection protocols and unified patient records. Samples will be made available to the scientific community and research organizations investigating pathogeneses and developing diagnostics and new treatments.
Our research team analyses the associated data for clues that may lead to a better understanding of the disease, identify potential biomarkers and ultimately develop a cure for vitiligo through the Vitiligo CloudBank system.
Until recently, vitiligo researchers were generally limited to conducting studies on patient samples they could acquire themselves. When the Foundation started there were no centralized database or biorepository. We have started the first Vitiligo Biobank with a 100+ sample collection from the completed research project in genetics in late January 2013 »»»
Vitiligo Biobank Network
Vitiligo BioBank consists of the principal location and a number of participating biobanks in key regions. They hold collections of biosamples along with clinical profiles of vitiligo patients and annotations on efficacy of vitiligo therapy in combination with different drugs »»»
General and Technical Details
Vitiligo Biobank is a metabiobank that provides researchers the possibility to search for and request access to the biomaterial that fits their research purposes in vitiligo. It is built under a federated network model, which encourages participation by sample owners who are concerned about their ownership of samples and associated clinical data »»»
Biosample Acquisition Process
The VR Foundation is accepting applications from qualified investigators who wish to gain access to biospecimens and associated clinical data for use in translational scientific research. Applications undergo a comprehensive review for scientific merit and impact.
All applicants must first submit a Letter of Intent with a general audience summary (up to 250 words), goals of the research, statement of hypothesis and budget summary. The VRF will review Letters of Intent and notify applicants as to the suitability of the study.
Contributions by Patients
Researchers need blood, skin or hair samples to make discoveries that will lead to new treatments and, ultimately, a cure for vitiligo. To arrive at conclusions that are reliable and not likely to be a coincidence or due to chance, it is always necessary to examine a large number of samples »»»
Frequently Asked Questions
Q: Will anyone know that this is my blood or hair?
A: No. The samples will be given a code and that code will be entered into a specially protected computer system. Researchers will NOT be able to tell who the health facts come from, because the code removes the information about the sample that would match it to one single person »»»
Go to Vitiligo Biobank website to learn more: www.VitiligoBiobank.org
I support the petition to designate June 25 as Vitiligo World Day and save millions of people worldwide from social isolation and persecution.
What is coming?
United Nations ECOSOC session
The tenth session of the Conference of States Parties to the Convention on the Rights of Persons with Disabilities (CRPD) will take place from Tuesday 13 to Thursday ...13 June 2017 10:00, UN Plaza, New York
World Vitiligo Day celebration conference in Detroit, USA
U.S. World Vitiligo Day 2017 Theme: "Step Up for Vitiligo: A Call for Truth, Hope and Change!" Reflecting the mission of the “Step Up for Vitiligo” campaign that came...23 June 2017 18:00, Detroit, Michigan, USA
Is there a special diet for vitiligo?
We have specifically looked into claims that some food supplements or special diet may ease symptoms of vitiligo, or completely reverse it, and found no firm scientifi...
How to get insurance coverage for vitiligo treatments?
Most of health insurance companies will initially reject claims for vitiligo doctor visits or phototherapy treatments but with enough efforts you can have a substantia...
What tests should be done?
No tests are usually necessary to make the diagnosis. The white patches may be seen more easily under Wood's light examination.
How can I cure vitiligo?
There is no cure for vitiligo, but there are a number of effective treatment options that can be discussed with your GP or dermatologist. The aim of treatment is to st...