Vitiligo Biobank Background
The study of multifactorial diseases, such as vitiligo, requires analysis of complex interplay of symptoms, treatments and outcomes across a large number of people. Population surveys and biobanks are indispensable research tools, required for downstream therapy development. Even small collections of biosamples may be extremely precious for researcher in academic institution or biopharma company.
Until recently, vitiligo researchers were generally limited to conducting studies on patient samples they could acquire themselves. When the Foundation started there were no centralized biological database along with the pre-existing body of the clinical management or the historical study data, which is required in order to proceed with the development of specific therapies. We have run a special investigation study to determine whether VRF shall establish its own biobank.
Then the project's leadership crafted a careful strategy for vitiligo biobank development, with special attention paid to the security and confidentiality of the donor's information. 'Future proofing' involves collecting and processing samples to permit the widest possible range of scientific uses, while avoiding approaches that would impede possible future uses.
The Vitiligo Biobank uses a federated network model, which encourages participation by biosample owners who are concerned about their ownership of samples and associated clinical data. The resulting integrated biobank consists of our central facility, a cloud-based IT system, distributed collection and storage sites, and international biobank framework agreements.
We have started the first Vitiligo Biobank with a 100+ sample collection from the completed research project in genetics in late January 2013. Three months later, it held approximately 1,000 biosamples and detailed clinical profiles. Our target number is 10,000 samples and we encourage patients to donate samples. The primary biorepository is located in Moscow (Russia) with networked locations in 11 countries. See Map »
Photo: Vitiligo Biobank blood samples are stored at -70C until they are needed for specific research study
I support the petition to designate June 25 as Vitiligo World Day and save millions of people worldwide from social isolation and persecution.
What is coming?
VITFriends Fundraising and Awareness Concert in Boston
Featuring: M.C. - Mary-dith Tuitt Jazz vocalist - Katani Summer Steel drum instrumentalist - Justin Petty Vocalist - Emily Orji and Dr. Victor Huan...30 April 2017 14:30, Salvation Army Kroc Center, 650 Du...
Vitiligo Walk-A-Thon in Fort Dallas
The annual Vitiligo Walkathon is organized by Dallas Fort Worth Vitiligo Support Group on May 20, 2017. This is an event held to raise awareness about vitiligo in the...20 May 2017 09:00, Dallas, Texas
What is vitiligo?
Vitiligo (pronounced vit-ill-EYE-go) is a relatively common skin disease characterized by smooth, white, painless spots or patches on various parts of the body. It doe...
Who is prone to vitiligo?
Vitiligo affects 0.5-2% of the population, and occurs in all races and all social levels. Vitiligo can affect people of all ages, but often starts between the ages of ...
Will it spread?
The condition varies from person to person. Some people only get a few small, white patches that progress no further. Other people get bigger white patches that join u...
Polypodium leucotomos as an adjunct treatment for vitiligo?
Extracts of the tropical fern Polypodium leucotomos appear to possess beneficial properties for the vitiligious skin. Polypodium leucotomos (also classified as Polypo...