We address every phase in the vitiligo drug discovery process, from basic research all the way to the clinic, in order for new treatments to reach patients. At the Vitiligo Research Foundation, we have only one incentive: to bring a vitiligo treatment to market for nearly a 100 million people worldwide who are affected by this devastating condition.
WHAT WE AIM TO ACHIEVE
- For Patients, the depth and breadth of our research and global advocacy campaign gives hope for regaining their color in the foreseeable future.
- For Biotech, our research provides multiple potential targets against which therapies may be demonstrated and developed.
- For Pharma, we aim to become the principal source for high-quality medical data and patient registry, to expedite clinical trials and shorten time for vitiligo product development.
Early-stage collaboration is essential for Big Pharma to replenish pipelines as much as for vitiligo patients to get their color back. It would be advantageous to focus collaborative efforts on few promising targets and employ rigorous project management to reach fast go/no-go decisions.
Our inter-disciplinary research model considers all elements of the basic and clinical research, drug discovery and drug development value chain. Our approach to vitiligo R&D is that it can only be successful through a combination of friendly preclinical and clinical research environment, in-depth data mining and their analysis, and social analytics, with proper project and relationship management. Read more about our open source research model.
VR Foundation supports vitiligo research across the biomedical spectrum, from fundamental lab-based science to clinical trials. VRF is proud of its low administrative costs and the high percentage of funds that are available to support its primary mission. A variety of research grants are funded each year to support translational research and clinical studies that will benefit the vitiligo community at large. Read more
The Vitiligo Biobank is a networked collection of well-organized blood, serum, DNA and hair samples integrated with detailed clinical records. They are necessary to conduct research and develop a therapy. We have set up and connected vitiligo biobanks in 9 countries to significantly expedite data collection and save 3-5 years on drug development for vitiligo. Read more
VITILIGO CLOUD BANK
We applied a cutting edge approach to bio-informatics, technology, and in-depth scientific knowledge to build the Vitiligo CloudBank, the first disease-specific electronic health record in vitiligo. It allows patients to register anonymously online and record vitiligo symptoms and treatment outcomes.
Doctors can securely communicate with their patients, monitor the disease progression and evaluate outcomes in order to get better treatment results. Researchers may be able to analyze aggregated data sets for clues that may lead to a better understanding of the disease, to identify potential biomarkers and ultimately develop a cure for vitiligo. Read more
The following Publications have resulted from or have been supported with grants from the VR Foundation.
I support the petition to designate June 25 as Vitiligo World Day and save millions of people worldwide from social isolation and persecution.
What is coming?
United Nations ECOSOC session
The tenth session of the Conference of States Parties to the Convention on the Rights of Persons with Disabilities (CRPD) will take place from Tuesday 13 to Thursday ...13 June 2017 10:00, UN Plaza, New York
World Vitiligo Day celebration conference in Detroit, USA
U.S. World Vitiligo Day 2017 Theme: "Step Up for Vitiligo: A Call for Truth, Hope and Change!" Reflecting the mission of the “Step Up for Vitiligo” campaign that came...23 June 2017 18:00, Detroit, Michigan, USA
How to get insurance coverage for vitiligo treatments?
Most of health insurance companies will initially reject claims for vitiligo doctor visits or phototherapy treatments but with enough efforts you can have a substantia...
Is it possible to stop the progression of vitiligo?
It is true that vitiligo progression could be stopped in 4 out of 5 cases by the use of potent systemic corticosteroids. However, systemic corticosteroids might ha...
Will it spread?
The condition varies from person to person. Some people only get a few small, white patches that progress no further. Other people get bigger white patches that join u...
Is there a traditional medicine to treat vitiligo?
During the last decades, new methods of therapeutic research, ethno-botany and ethno-pharmacology and even archeo-pharmacology (PubMed), have been used extensively to ...