We address every phase in the vitiligo drug discovery process, from basic research all the way to the clinic, in order for new treatments to reach patients. At the Vitiligo Research Foundation, we have only one incentive: to bring a vitiligo treatment to market for nearly a 100 million people worldwide who are affected by this devastating condition.
WHAT WE AIM TO ACHIEVE
- For Patients, the depth and breadth of our research and global advocacy campaign gives hope for regaining their color in the foreseeable future.
- For Biotech, our research provides multiple potential targets against which therapies may be demonstrated and developed.
- For Pharma, we aim to become the principal source for high-quality medical data and patient registry, to expedite clinical trials and shorten time for vitiligo product development.
Early-stage collaboration is essential for Big Pharma to replenish pipelines as much as for vitiligo patients to get their color back. It would be advantageous to focus collaborative efforts on few promising targets and employ rigorous project management to reach fast go/no-go decisions.
Our inter-disciplinary research model considers all elements of the basic and clinical research, drug discovery and drug development value chain. Our approach to vitiligo R&D is that it can only be successful through a combination of friendly preclinical and clinical research environment, in-depth data mining and their analysis, and social analytics, with proper project and relationship management. Read more about our open source research model.
VR Foundation supports vitiligo research across the biomedical spectrum, from fundamental lab-based science to clinical trials. VRF is proud of its low administrative costs and the high percentage of funds that are available to support its primary mission. A variety of research grants are funded each year to support translational research and clinical studies that will benefit the vitiligo community at large. Read more
The Vitiligo Biobank is a networked collection of well-organized blood, serum, DNA and hair samples integrated with detailed clinical records. They are necessary to conduct research and develop a therapy. We have set up and connected vitiligo biobanks in 9 countries to significantly expedite data collection and save 3-5 years on drug development for vitiligo. Read more
VITILIGO CLOUD BANK
We applied a cutting edge approach to bio-informatics, technology, and in-depth scientific knowledge to build the Vitiligo CloudBank, the first disease-specific electronic health record in vitiligo. It allows patients to register anonymously online and record vitiligo symptoms and treatment outcomes.
Doctors can securely communicate with their patients, monitor the disease progression and evaluate outcomes in order to get better treatment results. Researchers may be able to analyze aggregated data sets for clues that may lead to a better understanding of the disease, to identify potential biomarkers and ultimately develop a cure for vitiligo. Read more
The following Publications have resulted from or have been supported with grants from the VR Foundation.
I support the petition to designate June 25 as Vitiligo World Day and save millions of people worldwide from social isolation and persecution.
What is coming?
NY Vitiligo Community Meeting in September
Our next meeting will be on Thursday, September 21st, at 7PM - 8:30PM on the 11th floor of NYU's Ambulatory Care Center at 240 East 38th Street, between 2nd and 3rd Av...21 September 2017 19:00, 11th floor of NYU's Ambulatory Car...
Vitiligo Advocacy Day at the US Capitol
Save-the-Date for the much anticipated Vitiligo Advocacy Day at the United States Capitol this fall. As many of you know, the Advocacy Committee of the Global Vitilig...04 October 2017 10:00, Washington, DC
What's better: laser or phototherapy?
In a recent controlled study researchers assessed effect and safety of different laser and phototherapy treatments, such as excimer laser/light, narrowband UVB, UVA an...
Can Scenesse be used for vitiligo treatment?
The drug Scenesse from Clinuvel has been tested in clinical trials in relation vitiligo. Profs. Henry Lim, Mark Lebwohl and coauthors reported (PubMed) results of mult...
Dermaroller® use for vitiligo therapy
A derma-roller is a medical device that looks like a cylindrical shaped drum studded with very fine needles and is produced under several different names. It is used i...
I have a new job - should I tell colleagues about my vitiligo?
If you are starting a new job and you are concerned about stares and questions about your skin, try a proactive approach. When the time is right and you are feeling co...