The Vitiligo BioBank is a non-profit collection of biological samples and detailed clinical data, designed to facilitate medical research into vitiligo.
The core asset of Vitiligo Biobank is a large collection of well-organized hair, blood, serum and DNA samples, integrated with comprehensive clinical records.
We collect and store large number of samples throughout the network of collaborators in 11 countries, using standard collection protocols and unified patient record. Samples will be made available to the scientific community and research organizations investigating pathogeneses and developing diagnostics and new treatments.
Our research team analyses the associated data for clues that may lead to a better understanding of the disease, identify potential biomarkers and ultimately develop a cure for vitiligo through the Vitiligo CloudBank system.
Until recently, vitiligo researchers were generally limited to conducting studies on patient samples they could acquire themselves. When the Foundation started there were no centralized database or biorepository. We have started the first Vitiligo Biobank with a 100+ sample collection from the completed research project in genetics in late January 2013 »»»
Vitiligo Biobank Network
Vitiligo BioBank consists of the principal location and a number of participating biobanks in key regions. They hold collections of biosamples along with clinical profiles of vitiligo patients and annotations on efficacy of vitiligo therapy in combination with different drugs »»»
General and Technical Details
Vitiligo Biobank is a metabiobank that provides researchers the possibility to search for and request access to the biomaterial that fits their research purposes in vitiligo. It is built under a federated network model, which encourages participation by sample owners who are concerned about their ownership of samples and associated clinical data »»»
Biosample Acquisition Process
The VR oundation is accepting applications from qualified investigators who wish to gain access to biospecimens and associated clinical data for use in translational scientific research. Applications undergo a comprehensive review for scientific merit and impact.
All applicants must first submit a Letter of Intent with a general audience summary (up to 250 words), goals of the research, statement of hypothesis and budget summary. The VRF will review Letters of Intent and notify applicants as to the suitability of the study.
Contributions by Patients
Researchers need blood, skin or hair samples to make discoveries that will lead to new treatments and, ultimately, a cure for vitiligo. To arrive at conclusions that are reliable and not likely to be a coincidence or due to chance, it is always necessary to examine a large number of samples »»»
Frequently Asked Questions
Q: Will anyone know that this is my blood or hair?
A: No. The samples will be given a code and that code will be entered into a specially protected computer system. Researchers will NOT be able to tell who the health facts come from, because the code removes the information about the sample that would match it to one single person »»»
Go to Vitiligo Biobank website to learn more: www.VitiligoBiobank.org
I support the petition to designate June 25 as Vitiligo World Day and save millions of people worldwide from social isolation and persecution.
What is coming?
Spot It, Control It
Early vitiligo detection campaign is promoted by Natasha Pierre McCarthy, the Founder and President of the non-profit Vitiligo Bond from Atlanta, Georgia. During this ...06 September 2014 11:00, 1525 Clifton Road, Atlanta, GA 30322
IX Master Class on Vitiligo and Pigmentary Disorders in Bulgaria
will be held in Sofia, Bulgaria on May 23-24, 2015 under the chairmanship of Prof. Mira Kadurina M.D., PhD. DSc., the Head of Department of Dermatology and Allergology...23 May 2015 12:00, Military Medical Academy 3, G. Sof...
I have vitiligo: will my children have vitiligo, too?
In some cases vitiligo seems to be inherited and run in families, with children whose parents have vitiligo being at increased risk of developing the condition themsel...
Will it spread?
The condition varies from person to person. Some people only get a few small, white patches that progress no further. Other people get bigger white patches that join u...
What causes vitiligo?
The precise cause of vitiligo is not well understood. The white areas appear due to loss of the pigment (melanin) that gives skin its color and protects it from the su...
What tests should be done?
No tests are usually necessary to make the diagnosis. The white patches may be seen more easily under Wood's light examination.