WORLD VITILIGO DAY
Conceived by patients for patients, the World Vitiligo Day is a truly global event that aims to increase awareness of vitiligo and raise funds needed for research and education. VR Foundation's ambitious goal is to mark World Vitiligo Day on June 25 as a date to be observed annually by the United Nations and member states.
Who is behind it?
The idea of a World Vitiligo Day was first put forward by Steve Haragadon, the founder of the Vitiligo Friends network from USA and then later developed by Ogo Maduewesi, a vitiligo patient who is the Founder and Executive Director of the Vitiligo Support and Awareness Foundation in Nigeria. In early 2012, the VR Foundation has launched the 25June campaign.
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We, the undersigned, are just the few of estimated over 100 million people living, working, caring for our children and families all over the world, with this neglected disease, vitiligo » » »
There are many activities, ideas as well as sponsorship opportunities that can be pursued by individuals worldwide on June 25th » » »
Getting global recognition can take years of painstaking work, usually behind the scenes, by dedicated people focusing on nothing else.
Check out the World Vitiligo Day calendar or go to the official Facebook page for the most up-to-date info and discussions. Here is what we have planned together with the Vitiligo Support Group from Chandigarh, India on June 25 this year >>>
Last year, the World Vitiligo Day was celebrated in a series of synchronized events around the world. These have ranged from the distribution of leaflets to large events, which have made each World Vitiligo Day a huge success and generated worldwide media interest. Detailed report >>>
It started with the press conference in Rome on June 22nd, continued with free dermatology consultations across Italy over the weekend, rolled into street events in Brazil and Nigeria, appeared on media radars and screens in Botswana, Chad, China, Czech, France, India, Macedonia, the UK and USA on June 25th, and finished at the national dermatology congress in Russia on June 26th » » »
I support the petition to designate June 25 as Vitiligo World Day and save millions of people worldwide from social isolation and persecution.
What is coming?
Summer fun at AVRF Annual Retreat
American Vitiligo Research Foundation will be hosting its annual retreat on Friday, August 15 to Sunday, August 17, 2014. The program includes lots of summer fun for k...15 August 2014 10:01, Clarion Inn & Suites, Clearwater FL
IX Master Class on Vitiligo and Pigmentary Disorders in Bulgaria
will be held in Sofia, Bulgaria on May 23-24, 2015 under the chairmanship of Prof. Mira Kadurina M.D., PhD. DSc., the Head of Department of Dermatology and Allergology...23 May 2015 12:00, Military Medical Academy 3, G. Sof...
Is it covered by Medicare?
A Medicare rebate applies to a percentage of the consultation cost, please consult your GP for a referral to a dermatologist. Narrow band phototherapy (NB-UVB) is full...
Are there any famous people with vitiligo?
Many celebrities have dealt with vitiligo while remaining in the public eye, maintaining a positive outlook, and having a successful career. Here are a few courageous ...
Is it possible to stop the progression of vitiligo?
It is true that vitiligo progression could be stopped in 4 out of 5 cases by the use of potent systemic corticosteroids. However, systemic corticosteroids might ha...
Isn't it just a cosmetic disorder?
Like it or not, we live in a society where appearance matters. It should come as no surprise that vitiligo impacts on the psychological well-being and quality of life ...