WORLD VITILIGO DAY
Conceived by patients for patients, World Vitiligo Day is a truly global event that takes place each year on June 25th to increase awareness of vitiligo and raise funds for research, support and education.
We want June 25th to be recognized by the United Nations as World Vitiligo Day. You can help us by signing our petition to the UN Secretary-General - read it below and make sure you go to www.25June.org and add your name to the 100,000s who have already signed.
Hear us as we speak with one voice about human rights, healthcare and education. We, the undersigned, are just the few of estimated over 100 million people living, working, caring for our children and families all over the world, with this neglected disease, vitiligo.
We contribute to every single industry and culture in the world. We are the rich and the poor. We are the face of the entire all neglected disease community. You find us in schools, hospitals, on TV and movies screens, sport arenas, and churches, while many went into seclusion and voluntary isolation from society.
Although vitiligo daily has destroyed the lives of millions of individuals since recorded history, predominantly in the developing world, there is no cure in sight. But few diseases give rise to more fear and loathing than vitiligo, especially in dark-skinned people, in whom it can be strikingly prominent. And because it is not contagious or life-threatening, we often receive no support whatsoever from our national healthcare systems.
Thus, I support the initiative 25June and respectfully require the United Nations to
1. Urgently pursue multilateral efforts in vitiligo healthcare and education, and to
2. Designate June 25 as the World Vitiligo Day.
Mr. Secretary-General, please hear our voice. We know you can encourage Member States to respect our rights. Please pursue policies supportive of neglected disease collaboration, vitiligo in particular. This is central to the human rights and personal dignity of millions of women, men and children on this Earth.
Yours in health and freedom,
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As of August 25, we have collected 486,661 signatures. Please add yours - go to www.25June.org and sign the petition now!
World Vitiligo Day'14 was the biggest yet, with a vast array of awareness and support events spanning the globe. Celebrations run the entire week, to accommodate multiple presentations, speeches and other events aimed at the patients and healthcare community. Report and Photos >>>
Last year, the World Vitiligo Day was celebrated in a series of synchronized events around the world. These have ranged from the distribution of leaflets to large events, which have made each World Vitiligo Day a huge success and generated worldwide media interest. Detailed report >>>
It started with the press conference in Rome on June 22nd, continued with free dermatology consultations across Italy over the weekend, rolled into street events in Brazil and Nigeria, appeared on media radars and screens in Botswana, Chad, China, Czech, France, India, Macedonia, the UK and USA on June 25th, and finished at the national dermatology congress in Russia on June 26th » » »
I support the petition to designate June 25 as Vitiligo World Day and save millions of people worldwide from social isolation and persecution.
What is coming?
VI Master Class on Vitiligo and Pigmentary Disorders in Croatia
VI Master Class on Vitiligo and Pigmentary Disorders (originally scheduled for Fall 2014) will be held under the presidency of Prof. Anrija Stanimirovic in a picturesq...01 May 2015 09:00, Radisson Blu Resort, Put Trstenika...
New York Vitiligo Support Group meeting
Vitiligo NY group meeting will be taking place on Wednesday, May 6th. We are so thrilled by the positive feedback we have received about the last meeting! We are excit...06 May 2015 18:30, 11th floor of NYU's Ambulatory Car...
What is vitiligo?
Vitiligo (pronounced vit-ill-EYE-go) is a relatively common skin disease characterized by smooth, white, painless spots or patches on various parts of the body. It doe...
Can a gluten-free diet help with vitiligo?
Gluten is the spongy complex of proteins found in wheat, rye and barley, which puffs up when baked with yeast. It is important to realize there are three different...
I have vitiligo: will my children have vitiligo, too?
In some cases vitiligo seems to be inherited and run in families, with children whose parents have vitiligo being at increased risk of developing the condition themsel...
Is it covered by Medicare?
A Medicare rebate applies to a percentage of the consultation cost, please consult your GP for a referral to a dermatologist. Narrow band phototherapy (NB-UVB) is full...