WORLD VITILIGO DAY
Conceived by patients for patients, World Vitiligo Day is a truly global event that aims to increase awareness of vitiligo and raise funds needed for research and education.
Over 100 million people suffer from vitiligo as a result of the social stigma and severe psychological burden that result. They are the victim of ostracism, discrimination and many lose their homes, families and livelihoods because of this disease, yet there is no cure in sight. By focusing on collaboration and education we can make a real difference in the lives of so many, and we can get closer to finding a cure.
World Vitiligo Day 2013
Getting global recognition can take years of painstaking work, usually behind the scenes, by dedicated people focusing on nothing else.
Who is behind it?
The idea of a World Vitiligo Day was first put forward by Steve Haragadon, the founder of the Vitiligo Friends network from USA and then later developed by Ogo Maduewesi, a vitiligo patient who is the Founder and Executive Director of the Vitiligo Support and Awareness Foundation in Nigeria. In early 2012, the VR Foundation has launched the 25June campaign and the dedicated website. Read full story on Wikipedia » » »
Who is involved?
Local and national vitiligo patient associations and medical societies are active members of the World Vitiligo Day, and their numbers are growing with every year. Anyone who wants to help raise awareness for vitiligo can get involved. The WVD Steering Committee oversees the direction of World Vitiligo Day, and coordinates the global media campaign and activities. The Steering Committee was started by the VR Foundation and now is made up of vitiligo patients and patient association representatives from different countries.
What is 25June Initiative?
VR Foundation's ambitious goal is to mark World Vitiligo Day on June 25 as a date to be observed annually by the United Nations and member states » » »
We, the undersigned, are just the few of estimated over 100 million people living, working, caring for our children and families all over the world, with this neglected disease, vitiligo » » »
There are many activities, ideas as well as sponsorship opportunities that can be pursued by individuals worldwide on June 25th » » »
Media ToolsFurther to the success of the media activities surrounding the World Vitiligo Day campaign in 2012, we are delighted to share with you the new media toolkit for 2013 » » »
Last year, the World Vitiligo Day was celebrated in a series of synchronized events around the world. These have ranged from the distribution of leaflets to large events, which have made each World Vitiligo Day a huge success and generated worldwide media interest.
It started with the press conference in Rome on June 22nd, continued with free dermatology consultations across Italy over the weekend, rolled into street events in Brazil and Nigeria, appeared on media radars and screens in Botswana, Chad, China, Czech, France, India, Macedonia, the UK and USA on June 25th, and finished at the national dermatology congress in Russia on June 26th » » »
I support the petition to designate June 25 as Vitiligo World Day and save millions of people worldwide from social isolation and persecution.
Is vitiligo contagious?
Vitiligo isn't contagious, so you can't catch it from other people or pass it on.
I have vitiligo: will my children have vitiligo, too?
In some cases vitiligo seems to be inherited and run in families, with children whose parents have vitiligo being at increased risk of developing the condition themsel...
Is it covered by Medicare?
A Medicare rebate applies to a percentage of the consultation cost, please consult your GP for a referral to a dermatologist. Narrow band phototherapy (NB-UVB) is full...
Is it possible to stop the progression of vitiligo?
It is true that vitiligo progression could be stopped in 4 out of 5 cases by the use of potent systemic corticosteroids. However, systemic corticosteroids might ha...