WORLD VITILIGO DAY
Conceived by patients for patients, the World Vitiligo Day is a truly global event that aims to increase awareness of vitiligo and raise funds needed for research and education. VR Foundation's ambitious goal is to mark World Vitiligo Day on June 25 as a date to be observed annually by the United Nations and member states.
Hear us as we speak with one voice about human rights, healthcare and education. We, the undersigned, are just the few of estimated over 100 million people living, working, caring for our children and families all over the world, with this neglected disease, vitiligo.
We contribute to every single industry and culture in the world. We are the rich and the poor. We are the face of the entire all neglected disease community. You find us in schools, hospitals, on TV and movies screens, sport arenas, and churches, while many went into seclusion and voluntary isolation from society.
Although vitiligo daily has destroyed the lives of millions of individuals since recorded history, predominantly in the developing world, there is no cure in sight. But few diseases give rise to more fear and loathing than vitiligo, especially in dark-skinned people, in whom it can be strikingly prominent. And because it is not contagious or life-threatening, we often receive no support whatsoever from our national healthcare systems.
Thus, I support the initiative 25June and respectfully require the United Nations to
1. Urgently pursue multilateral efforts in vitiligo healthcare and education, and to
2. Designate June 25 as the World Vitiligo Day.
Mr. Secretary-General, please hear our voice. We know you can encourage Member States to respect our rights. Please pursue policies supportive of neglected disease collaboration, vitiligo in particular. This is central to the human rights and personal dignity of millions of women, men and children on this Earth.
Yours in health and freedom,
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As of August 25, we have collected 486,661 signatures. Please add your vote! Go to www.25June.org and sign the Petition now.
Getting global recognition can take years of painstaking work, usually behind the scenes, by dedicated people focusing on nothing else.
World Vitiligo Day'14 was the biggest yet, with a vast array of awareness and support events spanning the globe. Celebrations run the entire week, to accommodate multiple presentations, speeches and other events aimed at the patients and healthcare community. Check out the World Vitiligo Day calendar or go to the official Facebook page for the most up-to-date info and discussions. Report and Photos >>>
Last year, the World Vitiligo Day was celebrated in a series of synchronized events around the world. These have ranged from the distribution of leaflets to large events, which have made each World Vitiligo Day a huge success and generated worldwide media interest. Detailed report >>>
It started with the press conference in Rome on June 22nd, continued with free dermatology consultations across Italy over the weekend, rolled into street events in Brazil and Nigeria, appeared on media radars and screens in Botswana, Chad, China, Czech, France, India, Macedonia, the UK and USA on June 25th, and finished at the national dermatology congress in Russia on June 26th » » »
I support the petition to designate June 25 as Vitiligo World Day and save millions of people worldwide from social isolation and persecution.
What is coming?
ED'S NYC Marathon Run & Fundraising
In 2014, every single TCS New York City marathoner and supporter unite to contribute towards the goal of raising funds for charities. Ed Lee will be running his first ...02 November 2014 12:00, New York, NY
Facemotions Portraits and Roundtable on Vitiligo in Montreal
Take part in a photo shoot with Stephanie Corne, an incredible artist from NYC and vitiligo activist, to be included in the Facemotions portrait Gallery of Vitiligo. P...14 November 2014 15:00, MAI 3680 Rue Jeanne-Mance Montrea...
What tests should be done?
No tests are usually necessary to make the diagnosis. The white patches may be seen more easily under Wood's light examination.
Will it spread?
The condition varies from person to person. Some people only get a few small, white patches that progress no further. Other people get bigger white patches that join u...
I have vitiligo: will my children have vitiligo, too?
In some cases vitiligo seems to be inherited and run in families, with children whose parents have vitiligo being at increased risk of developing the condition themsel...
Isn't it just a cosmetic disorder?
Like it or not, we live in a society where appearance matters. It should come as no surprise that vitiligo impacts on the psychological well-being and quality of life ...