WORLD VITILIGO DAY
Conceived by patients for patients, World Vitiligo Day is a truly global event that takes place each year on June 25th to increase awareness of vitiligo and raise funds for research, support and education.
We want June 25th to be recognized by the United Nations as World Vitiligo Day. You can help us by signing our petition to the UN Secretary-General - read it below and make sure you go to www.25June.org and add your name to the 100,000s who have already signed.
Hear us as we speak with one voice about human rights, healthcare and education. We, the undersigned, are just the few of estimated over 100 million people living, working, caring for our children and families all over the world, with this neglected disease, vitiligo.
We contribute to every single industry and culture in the world. We are the rich and the poor. We are the face of the entire all neglected disease community. You find us in schools, hospitals, on TV and movies screens, sport arenas, and churches, while many went into seclusion and voluntary isolation from society.
Although vitiligo daily has destroyed the lives of millions of individuals since recorded history, predominantly in the developing world, there is no cure in sight. But few diseases give rise to more fear and loathing than vitiligo, especially in dark-skinned people, in whom it can be strikingly prominent. And because it is not contagious or life-threatening, we often receive no support whatsoever from our national healthcare systems.
Thus, I support the initiative 25June and respectfully require the United Nations to
1. Urgently pursue multilateral efforts in vitiligo healthcare and education, and to
2. Designate June 25 as the World Vitiligo Day.
Mr. Secretary-General, please hear our voice. We know you can encourage Member States to respect our rights. Please pursue policies supportive of neglected disease collaboration, vitiligo in particular. This is central to the human rights and personal dignity of millions of women, men and children on this Earth.
Yours in health and freedom,
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As of January 15, 2016, we have collected 500,391 signatures. Please add yours - go to www.25June.org and sign the petition now!
To find out more about this very special event, go to the official Facebook page for the most up-to-date info and discussions.
VRF Board of Directors and WVD Steering Committee have chosen Prague, Czech Republic, as campaign’s 2016 headquarters. At the axis of Europe, this beautiful city is a center of dermatology ideas and home to a number of young, intelligent and engaged skin specialists. It also has much to offer the visitor, from its stunning architecture and river, to its vibrant cultural scene and famed beer halls and cafés.
Vitiligo community in USA are considering a RALLY in Washington DC on the Steps of the Capitol on June 25th from 11:30 am - 3:30 pm. This idea came alive after Massachusetts State House rally organized by VITFriends from Boston and joined by VRF on June 25, 2015. For details, please visit VITFriends or drop us a line.
World Vitiligo Day 2015 campaign headquarters are in Shenyang, China, under the presidency of Prof. Xing-Hua Gao, MD. Thousands of vehement volunteers around the world raise awareness for vitiligo on the streets and in the media, in addition to 30+ major hospitals receiving vitiligo patients and holding education events today. >>>
World Vitiligo Day'14 was the biggest yet, with a vast array of awareness and support events spanning the globe. Celebrations run the entire week, to accommodate multiple presentations, speeches and other events aimed at the patients and healthcare community. Report and Photos >>>
This year, the World Vitiligo Day was celebrated in a series of synchronized events around the world. These have ranged from the distribution of leaflets to large events, which have made each World Vitiligo Day a huge success and generated worldwide media interest. Detailed report >>>
It started with the press conference in Rome on June 22nd, continued with free dermatology consultations across Italy over the weekend, rolled into street events in Brazil and Nigeria, appeared on media radars and screens in Botswana, Chad, China, Czech, France, India, Macedonia, the UK and USA on June 25th, and finished at the national dermatology congress in Russia on June 26th » » »
Humble beginnings with online petition at Petitions24 started by Ogo Maduewesi from VITSAF (Nigeria.) 111 signatures were collected before the end of June 25, 2011 (pdf)
I support the petition to designate June 25 as Vitiligo World Day and save millions of people worldwide from social isolation and persecution.
What is coming?
XVII Master Class on Vitiligo in Manaus, Brazil
XVII Master Class on Vitiligo in Brazil will focus on therapeutic options for vitiligo, including ethno-botanical or 'traditional medicines' of Amazon tribes. When: J...03 June 2016 00:00, Manaus, Brazil
Can chemicals cause vitiligo?
Yes, certain chemicals can, indeed, induce or worsen vitiligo. Most commonly they include phenols, such as 4-tertiary-butyl phenol (4-TBP, found in adhesives) or 4-ter...
Can Scenesse be used for vitiligo treatment?
The drug Scenesse from Clinuvel has been tested in clinical trials in relation vitiligo. Profs. Henry Lim, Mark Lebwohl and coauthors reported (PubMed) results of mult...
Can a gluten-free diet help with vitiligo?
Gluten is the spongy complex of proteins found in wheat, rye and barley, which puffs up when baked with yeast. It is important to realize there are three different...
Is there a special diet for vitiligo?
We have specifically looked into claims that some food supplements or special diet may ease symptoms of vitiligo, or completely reverse it, and found no firm scientifi...