World Vitiligo Day Report and Photos 2012
Dear Friends and Colleagues,
An ambitious global event, the World Vitiligo Day was held on 25 June this year. It also marks the passing date of pop-star Michael Jackson, a long-time vitiligo sufferer.
This observance, which was coordinated by VR Foundation in partnership the World Health Academy, VITSAF, Vitiligo Project, public health and patient support organizations, provided an opportunity to draw the international attention to the impact of vitiligo on lives of over 100 million people worldwide.
The World Vitiligo Day was celebrated in a series of synchronized events around the world. It started with the press conference in Rome on June 22nd, continued with free dermatology consultations across Italy over the weekend, rolled into street events in Brazil and Nigeria, appeared on media radars and screens in Botswana, Chad, China, Czech, France, India, Macedonia, the UK and USA on June 25th, and finished at the national dermatology congress in Russia on June 26th… until the next big event in December.
Fighting vitiligo is the main priority of the VR Foundation. At VRF, we are working with our partners to ensure that every donated dollar has maximum impact to reduce the burden of vitiligo on the patients, with strategies as diverse as the disease itself.
We thank all who are uniting at the national, state, local, and individual levels to confront the challenges, myths, and fears that shatter day-to-day lives of people with vitiligo and other neglected skin disorders.
In the spirit of this observance, let’s each take the time to unite in our own efforts to combat this old-time foe. Help keep the global community informed about World Vitiligo Day initiative by directing patients, colleagues, officials and media to www.25June.org
We would still like to hear from those of you who haven't had a chance to share your thoughts with us by emailing to email@example.com .
Media release (May 25, 2012)
Press-release (June 19, 2012)
Reports from our support groups indicate that we have collected an estimated number of 3,000+ petitions, which will soon be uploaded online. Check out our incredible activity map on 25June!
Prof. Torello Lotti and CEO VRF Yan Valle are holding the press conference at AULA MAGNA, UNIVERSITÁ MARCONI, Via Plinio 44, ROMA on June 22, 2012. Despite the transportation strike that paralyzed the city and stranded some journalists and health officials, it went well.
Mr. Dave Allemby from Wombwell Sporting and Athletics Club is carrying Olympic flame on Ponteftract Road in Lundwood, Barnsley at approx 1.27 pm between Tumbling Lane and 366a Pontefract Roadon, on World Vitiligo Day. Dave has suffered from vitiligo for over 40 years. He is now fundraising for Vitiligo Society from the UK.
Ms. Ogo Maduewesi, VITSAF founder, mobilized a rolling team to educate and collect petitions across Nigeria. Five different States joined the action, despite the unrest in Northern Nigeria. Team members went on the air on NTA Network and TV in Abuja. Unfortunately, their website was hacked and trashed on June 25th. Check out more photos on Facebook .
The team occupied streets in Lagos, Abuja, Abeokuta, Anambra and PH. Ogo says, - "We are really grateful to God that we could do this successfully despite all challenges."
We could not have accomplished much without this young, energetic team from San Paolo, Brazil under the leadership of Prof. Paulo R. Cunha, PhD, MD, the chairman of the Department of Dermatology in Jundiaí Medical School.
FOX TV Detroit: World Vitiligo Day 2012 bonds Michael Jackson with Fox 2's Lee Thomas (link to MyFoxDetroit website, a pop-up window will open)
As many of you probably already know, Fox 2's Lee Thomas lives with Vitiligo. Raising awareness - and reaching out to people around the world who live with the disease - has been a daily mission for Lee. He even produced an award-winning documentary on his experience.
Lee Thomas: The Nine discusses World Vitiligo Day 2012 on FoxTV (link to Fox TV website, a pop-up window will open)
Collecting petitions on the last day of the World Vitiligo Day campaign at the Russian Congress of Dermatology in Krokus City Hall on June 26, 2012 (technically, it was still June 25 in the US!) Esteemed colleagues from all over the Russia and CIS gathered to hear the latest about clinical and scientific issues in dermatology.
The VRF Board expresses its appreciation to the Macedonian Society Of Dermatology for support of the 25June initiative that will develop and retain tomorrow's leaders in the specialty and advance patient care. Watch interview of Dr. Natasa Teovska on YouTube.
Updated on July 28, 2012: BREAKING NEWS on World Vitiligo Day campaign
The US Delaware Gov. Markell To Proclaim July As Vitiligo Awareness Month. Markell will be joined by members of the Delaware Vitiligo Support and Awareness Group in his office in the Tatnall Building in Dover. This is the first major event in vitiligo since the World Vitiligo Day campaign has begun only a month ago.
I support the petition to designate June 25 as Vitiligo World Day and save millions of people worldwide from social isolation and persecution.
What is coming?
May 24, 2013: VRF Presentation at EADV Spring Symposium
Sodium oxodihydroacridinylacetate in treatment of active vitiligo. Results of preliminary clinical study. Abstract and presentation here
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