We address every phase in the vitiligo drug discovery process, from basic research all the way to the clini...MORE
Vitiligo (pronounced vit-ill-EYE-go) is a generally unpredictable skin disease, which results in a loss of ...MORE
WORLD VITILIGO DAY
Conceived by patients for patients, the World Vitiligo Day is a truly global event that aims to increase aw...MORE
The VRF is harnessing the power of research, education, mass-collaboration and modern communication to comb...MORE
ABC's Of Vitiligo
At the Vitiligo Research Foundation we may help you understand your skin condition, feel more in control, a...MORE
The World Vitiligo Map is a global directory that will provide you with information on the health care prov...MORE
Many celebrities have dealt with vitiligo while remaining in the public eye, maintaining a positive outlook...MORE
Vitiligo is an on-going art project for artist Stephanie Corne, photographers Ariel Taub or Mina Sarenac, ...MORE
Who we are?
Firmly committed to curing Vitiligo, the VR Foundation is a 501(c)3 non-profit organization funding and fast-tracking medical research globally. Our mission is to accelerate the end of suffering for millions of people who suffer from vitiligo through research, support and education » » »more
Stay in touch! Read inspiring stories from around the world, get exclusive reviews on research and treatments, and find opportunities to get involved in our quarterly newsletter.
The Vitiligo BioBank is a non-profit collection of biological samples and detailed clinical data, designed to facilitate medical research into vitiligo. The core asset of our unique Vitiligo Biobank is a large collection of well-organized hair, blood, serum and DNA samples, integrated with comprehensive clinical records.more
Vitiligo news: a major change in India 17.08.2014
In June 2014 an integrated global pharma company from India Dr. Reddy’s had reportedly acquired rights and re-launched lotion for vitiligo called Melgain. Generic name is Decapeptide, using the Basic Fibroblast Growth Factor or bFGF, a substance the body naturally produces for maintaining the structure and function of melanin producing cells. Repigmentation is attributed to the growth of melanocytes in depigmented hair roots in the vitiligo patch and also the skin directly surrounding the patch. Patients generally receive better and faster repigmentation, especially when bGFG is used in combination with other medical treatment options. The average cost in India is $12 for 5mg (5mL.)
As if in response to this move (or vice versa, we are not really sure on this), US-based company PhotoMedex has recently announced bringing its laser treatment technology VTRACK to India on a massive scale. Company's local subsidiary has set up five certified clinics in Hyderabad on a franchisee basis, and look forward to adding more in the next 4-5 years. It's new campaign "Live Clear. Live Free." drives awareness of the standard of care for vitiligo, attracting dermatologists to vitiligo discipline nationwide. The company stated full benefit of the vitiligo treatment would take 10-20 sessions. VTRACK uses UVB range of 280 – 315 nm. Each sessions costs Rs 2,400 or approximately $40.
Once Vitiligo Devil Child, now a rising star 14.08.2014
A lot has happened since we decided to take a quick summer break... DESIGUAL, a fashion chain from Spain, has signed Chantelle Winnie Harlow, the world's first top model with vitiligo, as the face of its autumn-winter 2014 campaign.
New York came into a public spotlight when awesome members of support group led by Valarie Molyneaux decided to bring the vitiligo story into the streets of Harlem. In the engaging, moving, and unforgettable memoir Taking Flight, Michaela DePrince shares her dramatic journey from an orphan "vitiligo devil child" in Sierra Leone to becoming one of world's most exciting rising ballet stars.
Writer & director Nicola Wong from UK has started the trans-media project on vitiligo, to inspire and raise awareness through the power of cinematograph. Stay tuned for more news to come!
Our office will be closed for vacations until August 15th 29.07.2014
Please be informed that our NY office will be closed for summer holidays from August 1st through August 15th. We will continue to receive email and voice messages but may not respond immediately. We thank you very much for your cooperation and understanding.
Clinuvel receives takeover offer from a notorious short seller 29.07.2014
Clinuvel Pharmaceuticals, drug developer for skin diseases from Melbourne, has received an unsolicited $95 million takeover offer from a controversial biotech company Retrophin, soon after sudden passing of Clinuvel's long time director Jack Wood.
On behalf of VRF management, we offer our sincere condolences to Jack's wife and family. Jack Wood was a remarkable person with a vision, big heart and brilliant sense of humor. Clinuvel is awaiting clearance from the European drug regulator for the use of its drug Scenesse in the treatment of a rare skin disease Erythropoietic Protoporphyria and potentially, in vitiligo.
Once a notorious short seller with loud public pressure, Reptophin's CEO Martin Shkreli now aims at drugs for ultra-rare and dangerous conditions. Clinuvel has appointed an advisory firm in the defense against the hostile offer.
What is coming?
Spot It, Control It
Early vitiligo detection campaign is promoted by Natasha Pierre McCarthy, the Founder and President of the non-profit Vitiligo Bond from Atlanta, Georgia. During this ...06 September 2014 11:00, 1525 Clifton Road, Atlanta, GA 30322
IX Master Class on Vitiligo and Pigmentary Disorders in Bulgaria
will be held in Sofia, Bulgaria on May 23-24, 2015 under the chairmanship of Prof. Mira Kadurina M.D., PhD. DSc., the Head of Department of Dermatology and Allergology...23 May 2015 12:00, Military Medical Academy 3, G. Sof...
Will it spread?
The condition varies from person to person. Some people only get a few small, white patches that progress no further. Other people get bigger white patches that join u...
I have vitiligo: will my children have vitiligo, too?
In some cases vitiligo seems to be inherited and run in families, with children whose parents have vitiligo being at increased risk of developing the condition themsel...
Is there a special diet for vitiligo?
There is no medical evidence of any link between diet and vitiligo. Therefore no dietary changes are recommended. A scientific paper published in 2003 showed promising...
What shall I say to my new colleagues about my vitiligo?
If you are starting a new job and you are concerned about stares and questions about your skin, try a proactive approach. When the time is right and you are feeling co...