How can I explain vitiligo to my children?
Vitiligo can be puzzling for a child because a person who has it isn't "ill" in a common sense.
To choose the right words to explain vitiligo diagnosis to a child, first consider their age and modify the conversation to make it age-appropriate. The following tips can help you to kick-start the conversation:
- Younger children: I have a polka dots on my skin. It does not hurt but I have to take medicine from the doctor to make it go away.
- Teens: I have an illness called vitiligo. It means my immune system isn't working right, and it makes my skin lose color. There isn't a cure yet, but the doctors have lots of different medicines that can help my skin.
Realize that this will not be one but rather a series of conversations, possibly stretched over days or weeks.
- Pick a good time, when your child most receptive to a serious conversation: on a car ride, before bed or any other time.
- Give information piece by piece and then wait for questions to come. Some may have “are you going to die like Michael Jackson?” type of question, other will have more practical questions like whether you will go to the beach this year.
- Explain it’s not their fault. Some children may blame themselves for a parent’s disease - because of being naughty or an occasional trauma during your recent family vacation. It is important to be clear about their lack of fault.
- Make them feel secure. Counter their possible fears by explaining that there will be no day-to-day changes, and their routines will be the same.
- DO NOT share your personal concerns with children, such as financial cost of treatment and how it may affect your profession.
I support the petition to designate June 25 as Vitiligo World Day and save millions of people worldwide from social isolation and persecution.
What is coming?
The Step Up for Vitiligo Gala
Dallas-Fort Worth Vitiligo Support Group is organizing 'The Step Up for Vitiligo Gala' which will take place on April 28th in Austin, Texas at UT-Austin. Dr. Ammar Ah...28 April 2018 12:00, Austin, Texas at UT-Austin
11th session of the Conference of States Parties to the CRPD
The 11th session Convention on the Rights of Persons with Disabilities (CRPD) will take place at the United Nations Headquarters, New York, from 12 to 14 June 2018. Mo...12 June 2018 09:00, UN Plaza, New York
Is vitiligo contagious?
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Is there a special diet for vitiligo?
We have specifically looked into claims that some food supplements or special diet may ease symptoms of vitiligo, or completely reverse it, and found no firm scientifi...
Pyrostegia venusta as a folk medicine for vitiligo?
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