International Dermatology Outcome Measures organization is having their virtual annual meeting from Thursday Oct 22 to Saturday Oct 24, 2020.
At this meeting, experts from all over the world are coming together virtually to discuss the best ways to measure how successful treatments are for different dermatologic diseases (outcomes), including vitiligo. Many of you participated in the outcomes research that took place at the US World Vitiligo Day Conference in Detroit in 2017. That research laid the foundation for the discussions that are going to take place during this conference.
This is vitally important for finding treatments that have the effects that are most important, and there is no one better than you to determine what the most meaningful vitiligo treatment results are. The “Vitiligo Workgroup” sessions will be presentations and you will have the opportunity to provide your input either during the “vitiligo breakout sessions” or on a phone call that will be arranged for participants with vitiligo after the conference. The full meeting agenda is attached here below.
Friday, October 23rd, 2020
11:35 – 11:50 am Vitiligo Workgroup #1
2:00 – 3:30 pm Vitiligo Breakout session
Saturday, October 24th, 2020
10:05 – 10:20 am Patient Panel for All Diseases
11:50 am – 12:05 pm Vitiligo Workgroup #2
12:20 – 2:00 pm Vitiligo Breakout session
- What is vitiligo?
Vitiligo (pronounced vit-ill-EYE-go) is a relatively common skin disease characterized by smooth, white, painless spots or patches on various parts of the body and hairs above i...
- I have vitiligo: will my children have vitiligo, too?
Children born to parents who both have the disorder are more likely to develop vitiligo. However, most children will not get vitiligo even if one parent has it. In children wit...
- Is there a traditional medicine to treat vitiligo?
Traditional medicines may be helpful in chronic, metabolic, and stress-related conditions early in the disease manifestation, before extensive tissue and organ damage has occurr...
Our work is entirely funded by private donations – we receive no money from government. Your money will help us continue funding research into vitiligo and supporting people affected by the condition.
Though it is not always easy to treat vitiligo, there is much to be gained by clearly understanding the diagnosis, the future implications, treatment options and their outcomes.
Many people deal with vitiligo while remaining in the public eye, maintaining a positive outlook, and having a successful career.Copyright (C) Bodolóczki Júlia
By taking a little time to fill in the anonymous questionnaire, you can help researchers better understand and fight vitiligo.