News

News

  • 2021-10-15
    We’re always on the lookout for new storybooks to put on our recommended reading list. Now, a new title for kids with vitiligo caught our eye: “I’ve Got Spots!” by Danielle Wheeler. The story was initially written as a poem on June 25th 2018, the...
  • 2021-10-14
    It was 2018 when "Unite For Vitiligo" first released its list of 10 most influential people with vitiligo aka 'vitiligans.' Since then the list has been trying to be a mirror of the vitiligo community and those who shape it, including our CEO Yan ...
  • 2021-10-12
    Adults often struggle with the right ways to convey complex things — like skin health — to children without scaring the living daylights out of them. Storybooks are an incredible tool to open up a conversation, present new concepts and help childr...
  • 2021-10-05
    A couple of weeks ago, Incyte has announced its new FDA-approved topical cream Opzelura (ruxolitinib) for the short-term treatment of the atopic dermatitis. At the recent annual meeting of the European Academy of Dermatology and Venereology, Incyt...
  • 2021-10-04
    The COVID-19 mRNA vaccines not only provide remarkable protection but also have been characterized by an overall safe and well-tolerated side effect profile. To date, several registry reviews and case series have documented cutaneous vaccine react...
  • 2021-10-03
    Last year, the vitiligo industry has been badly affected by COVID-19 pandemic. As the world haphazardly endeavors to defeat a deadly virus, many vitiligo projects in China, Germany, South Korea and the United States have been put on hold. But many...
  • 2021-10-02
    Investigators in Brazil concluded that the severity of acute COVID-19 did not differ among patients with vitiligo, atopic dermatitis, psoriasis and other skin diseases. However, different treatments were linked to specific changes in the course of...
  • 2021-09-17
    At VR Foundation one of our priorities is to help advance medical understanding about vitiligo. We know vitiligo disease awareness is important to you too. There is currently no cure for vitiligo, no FDA-approved repigmenting treatments, nor a uni...
  • 2021-09-16
    For roughly 15 years, Prof. John Harris, MD, Chair of Vitiligo Clinic and Research Center at the University of Massachusetts Medical School has been intensely studying the pathogenesis of vitiligo, and working on potential treatments. In this 30-...
  • 2021-09-04
    Graphic artist Dahja Cat is celebrating as her LGBT+ character with vitiligo skin has been officially added to Fortnite, a mega-popular video-game.  Joy, originally named Dalia, was made to show the beauty of vitiligo. Joy was going to be a spy-t...
  • 2021-07-08
    Our CEO Yan Valle was interviewed by Swiss-based Karger Publishers for The Waiting Room, a collection of health information for the general public. The heart of the blog consists of the Knowledge Transfer, a section in which experienced medical wr...
  • 2021-07-07
    VR Foundation joins HCPLive® Strategic Alliance Partnership Program to provide better care for vitiligo patients. This multimedia platform is dedicated to providing physicians with up-to-date information on the disease and treatments.  "This syne...
  • 2021-06-30
    Thank you for your participation in a Vitiligo Quality of Life study!  The results from the study, when completed, will be published in the medical literature and made publicly available. A summary of the results will be posted on this website. Y...
  • 2021-06-24
    FOR IMMEDIATE RELEASE On June 25th, 2021 A Light Will Shine On Vitiligo - The World’s ‘Forgotten’ Disease The eleventh annual World Vitiligo Day (WVD) will take place on June 25th, 2021 - with Jakarta, Indonesia playing host. This annual event un...
  • 2021-06-20
    Each year on June 25, the VR Foundation (VRF) joins with the community of over 100 million people impacted by vitiligo to recognize World Vitiligo Day. This year VRF marks global celebration event with a slew of ways you can get informed on vitili...
  • 2021-06-09
    We'll give you a free digital copy of "A No-Nonsense Guide To Vitiligo" in exchange for just a few minutes of your time! When you complete the Vitiligo Quality of Life survey you will receive link to a free download of the ebook in English or Span...
  • 2021-06-07
    Can you help us with something and get a free eBook?  We’re doing a massive Vitiligo Quality of Life study. These studies are pretty standard in dermatology – they help researchers understand the impact of a disease and are normally compared on a...
  • 2021-06-07
    News releases are a tried and tested PR tactic used to get stories published by the mass media. A news release (also known as a press or media release) is a written statement issued to entice the journalist, editor, blogger or influencer to cover ...
  • 2021-06-06
    Join Valarie Molyneaux on Monday, June 7 @ 1pm for her conversation with VITFriends new addition.Mrs Tifffany Grant, is VITFriends NY co-leader and podcast co-host. Her show is called "It's called Vitiligo." Listen Live On-Air or catch up after 2...
  • 2021-06-01
    It looks like our friends in Kazakhstan will kick off World Vitiligo Day celebrations this year. Online conference will begin on June 25, 9 am local time (midnight in New York).  See program attached.  
  • 2021-06-01
    June has been declared Vitiligo Awareness Month by the Governor of Massachusetts, thanks to Valarie Molyneaux and VITFriends from Boston. Massachusetts is the home state for the majority of biotech and biopharma companies, so there is no doubt the...
  • 2021-06-01
    1st VITILIGO TOUR OF FRANCE:  4,400 km - 18 stopover cities - 1 million winners  From June 2 to 26, 2021, the French Vitiligo Association will travel across France in order to : recognize vitiligo as a real disease and improve medical and insti...
  • 2021-05-28
    A short-term online survey is set to begin on May 30, 2021. It involves individual patients and support groups, academic institutions, and small-to-medium sized clinics. Study title: Online Survey of Quality of Life of Patients with Vitiligo Brief...
  • 2021-05-24
    Our friends at LaGrippe Research are inviting parents or legal guardians of children with vitiligo to participate in brief online session. Participants must currently be caring for a child aged 12 - 18 who diagnosed with non-segmental vitiligo (t...
  • 2021-05-17
    Incyte has announced positive topline results from its pivotal Phase 3 TRuE-V trial program that evaluated topical ruxolitinib, 1.5% cream in non-segmental vitiligo. The trials met their primary goals, showing that significantly more patients trea...