- Yan Valle, CEO VRF, will join VITFriends Vitiligo Support Group in Boston for an annual Christmas celebration this Saturday, December 15, from 7pm to 9pm at Cathay Pacific Restaurant in Quincy, MA. Come join us! For more information please contact Valarie Molyneaux, President...
- Today is International Day of Persons with Disabilities, an international observance promoted by the United Nations since 1992. The theme for this year is "Empowering persons with disabilities and ensuring inclusiveness and equality." Persons with disabilities include those w...
- Today is the fourth Friday in the month of November. For most of the world, that doesn’t mean much. For our American readers, however, that means it’s day after Thanksgiving Day and a long weekend this year. More than 300 million people are sharing similar experience, regardle...
- Soliciting pre-proposals for a Clinical Scientist Development Award for the US-based researchers, to provide mentored research funding to early-career physician-scientist faculty to enable their transition to independent and successful research careers. Approximately 17 grants...
- When Winnie Harlow hits the Victoria’s Secret runway at Pier 94 in New York City on November 8, 2018, she’ll make history. Every year, the Victoria's Secret show brings its famous Angels together for a glittery catwalk extravaganza. It's the most-watched fashion event of the y...
- Hi there, I suspect you’re not aware of the huge science scandal of the moment. At least 31 papers by three former Harvard researchers are being retracteddue to falsified and fabricated data. The authors of withdrawn papers helped waste hundreds of millions of dollars by the ...
- Scientists have uncovered a new way to curb autoimmunity — including vitiligo. A molecule recognized as essential for many functions in neurobiology is now identified as a natural "killer T-cell" controller, thereby pawing way to completely new therapies. It's probably a good...
- They say a picture is worth a thousand words….which is nice, because we definitely don’t have room for a thousand words here. Instead, we’ll bring you an art to highlight vitiligo beauty - and support a good cause. “Vitiligo Beauty” is a campaign we’re currently running in co...
- Labour Day is a federal US holiday, celebrated on the first Monday of September. (Most other countries celebrate Labor Day on May 1st.) It's pure genius, it you think about it for a moment. Being the last weekend before children returned to school, this is a three-day, family ...
- Happy World Vitiligo Day! It's time to let our flags fly and live the emotions that we feel in the depths of our being. Before I share with you my excitement about the World Vitiligo Day 2018 conference we just wrapped in Boston, I must tell you about our meeting at the Un...
- This superb tripartite program brought together world dermatology luminaries from 21 countries. Attendees enjoyed dynamic Hanoi with its Parisian ambience and Asian vitality, welcomed by Asian Academy of Dermatology and Venereology (AADV) President Syarief Hidayat (Indonesia),...
- As you may be aware, European Unions General Data Protection Regulation is changing on 25th May 2018. As a result, we have updated our Privacy Policy to explain clearly how we collect, store and manage your information. Nothing about your experience changes with this updatewe...
- A short-term online survey is set to begin on April 30, 2018. This massive study is designed to compare Quality of Life measure of patients with vitiligo in different countries within the same month. This could potentially relate to the burden of the disease in various regions...
- If youve been our reader for any length of time, youve heard me talk about home-based phototherapy many times, and for good reason. Its the best option available for most vitiligo patients, alone or in combination with topical treatments. A number of new devices for clinic- an...
- This sends yet another message to Big Pharma that vitiligo has a strong, well organized community of patients looking for effective treatments. And it will soon be joining forces with another group - the Vitiligo Working Group - at the annual AAD meeting in San Diego. Enjoy a...
- We'll answer 10 most frequently asked questions about vitiligo today. Join Facebook Live event at https://www.facebook.com/events/1947122275302199
- NY Vitiligo Support Group is conducting a brief online survey. This brief survey contains 24 questions that ask about living with vitiligo. The goal of this survey is to determine how much your skin has affected you over the past month. The survey should take approximately 5...
- It seems like a long time ago now (the holiday season has a way of stretching time in strange ways), but we sent you our newsletter just before the New Year with a sneak peek of our activities for this year. To recap, we are switching to a monthly email newsletter and weekl...
- We wish you a very Happy Holiday season and a peaceful and prosperous New Year. We hope your holidays will be filled with joy and laughter through the New Year. We are so grateful to have people like you in our lives.
- Can you spare one minute to tell us what concerns you most? We want to be sure that you receive value from your free subscription to Vitiligo News, our Facebook posts, newsletters and other publications. Asked another way: What is it that we might be able to help you with?...
- Looking for models with or without experience of all ages that have vitiligo. Photoshoot will be held in New York city on Sunday Dec 10th. For inquires, please email at info@zanderm.com
- Hello Readers, This is a quick one: a leading market research company is conducting paid interviews with vitiligo patients and their caregivers aged from 6 to 17 years. A 45-minute interview will help researchers better understand quality of life of those affected by vitil...
- Would you prefer to read Vitiligo News in Spanish rather than in English? Let us know. We are looking into a possibility to translate our monthly newsletters in Spanish - if we get enough requests to justify the additional effort of our small team. As an example, here ar...
- Starting a support group takes a lot of time and dedication. The ground work definitely needs to be in place before your first meeting is held. This downloadable guide from Shazaad Games, a VITFriends NY group co-leader, is a prime example of how a peer mediated vitiligo suppo...
- Gabby is one of those people that lights up a room the second she walks through the doors. Her personality and her smile truly define beauty. More admirably, Gabby kept that confidence through one of the most challenging self-image times of her life: Vitiligo. Continue readi...
FAQOther Questions
- Who is prone to vitiligo?
Scientists know that some people are genetically predisposed to a specific group of autoimmune diseases – including generalized vitiligo – but do not know who and why.It doesn’t...
- What tests should be done?
A well-trained dermatologist should be able to diagnose vitiligo and distinguish it from contact leukoderma or more than twenty other conditions with similar skin appearance bas...
- Can chemicals cause vitiligo?
It’s important to remember there are multiple factors involved in vitiligo onset, including genetic predisposition, living and working environments, and exposure to certain chem...
Though it is not always easy to treat vitiligo, there is much to be gained by clearly understanding the diagnosis, the future implications, treatment options and their outcomes.
Many people deal with vitiligo while remaining in the public eye, maintaining a positive outlook, and having a successful career.
Copyright (C) Bodolóczki JúliaBy taking a little time to fill in the anonymous questionnaire, you can help researchers better understand and fight vitiligo.