News

News

  • 2022-05-25
    The vitiligo community is coming together again on June 25th to raise awareness about this skin disease. World Vitiligo Day has been celebrated for more than a decade. Thanks to the idea of a different country hosting the campaign headquarters ea...
  • 2022-05-03
    We would like to invite you and your partner, friend, or family member (without vitiligo) to participate in a questionnaire study into the influence of coronavirus on vitiligo. The research is being conducted by the Netherlands Institute for Pigm...
  • 2022-04-29
    Can we count on your help to conduct an important study to learn how vitiligo starts, stops, and returns? This study requires a large number of volunteers, so we are reaching out to gather information on the feasibility of recruiting participants....
  • 2022-04-21
    Vitiligo International Patient Organizations Conference (VIPOC) is going live from Amsterdam! This biennial event begins this time in Amsterdam, the Netherlands, on April 21-23, 2022. Join us live via Zoom    PROGRAM Wednesday April 20th  A...
  • 2022-04-12
    FINAL CALL! Global Patients is conducting paid interviews with vitiligo patients aged from 6 to 12 years and their caregivers. A 60-minute phone interview will help researchers better understand quality of life of those affected by vitiligo, to...
  • 2022-04-12
    UPDATED April 12, 2022 Our exclusive analysis will help you understand a higly competitive environment for vitiligo therapies,  the key biotech and pharma companies involved in vitiligo drug development, clinical trial status, pharmacological act...
  • 2022-04-05
    There is a wide range of medical policies among health insurance companies in their coverage of vitiligo treatments. While some companies cover the full range of FDA-approved treatments, others do not cover it at all, only cover certain treatments...
  • 2022-03-29
    Our monthly newsletter is on it’s way to your mailbox. Given the horrendous human tragedy in Ukraine, it seems almost crass to talk about skin-deep problems right now. (If you are  wondering how you can help vitiligo community in Ukraine, please ...
  • 2022-03-25
    This year’s American Academy of Dermatology (AAD) Annual Meeting is already in full swing in Boston.  Nicolle Maquignon, VIPOC General secretary, reports from the GVF session: "Amit G Pandya, President, welcomed the participants. His speech was, ...
  • 2022-03-17
    The U.S. Food and Drug Administration (FDA) has extended the review period by three months for Incyte's application seeking approval of ruxolitinib cream (Opzelura) to treat vitiligo. The FDA is now expected to make a decision by July 18, instead...
  • 2022-03-13
    Clinical trials are experiments that test how well new drugs, treatments or devices work in people. Trials progress through Phases I-IV to test a drug candidate, find the appropriate dosage, and look for side effects. The goal is to determine whet...
  • 2022-02-15
    MORE THAN OUR SKIN is a documentary exploring the depths and effects of living with Vitiligo through the stories of five extraordinary women: Valarie, Millicent, Patricia, Alicia, and Katrina. This film tells a story of these women who found stren...
  • 2022-01-28
    Vitiligo International Patient Organizations Committee (VIPOC) is excited to release its ‘Save-The-Date’ for in-person VIPOC Conference 2022. This typically biennial event will take place in Amsterdam, the Netherlands, from Thursday, April 21st t...
  • 2022-01-26
    Vitiligo prevalence is between 0.76% and 1.11% of the U.S. population, including around 40% of those with the condition being undiagnosed, according to a study "Prevalence of Vitiligo Among Adults in the United States." Worldwide prevalence estim...
  • 2022-01-25
    This week, January 24 to 28, the Maui Derm for Dermatologists conference will be held in Maui, Hawaii, and virtually. The team of vitiligo researchers will be presenting Global VALIANT Natural History abstract poster titled “Exploring the natural...
  • 2021-12-29
    The U.S. FDA has granted Priority Review status to Incyte's sNDA for ruxolitinib 1,5% cream to treat vitiligo. Ruxolitinib cream is currently marketed under the brand name Opzelura for the short-term treatment of mild to moderate atopic dermatiti...
  • 2021-12-16
    In 1993, Oprah Winfrey made history by conducting the most-watched interview in television history. It was an exclusive talk with Michael Jackson who had refused to be interviewed for 14 years. 90 million people tuned in for the sit-down chat at t...
  • 2021-12-10
    A patient journey is an imaginary pathway a patient takes as one progresses through different phases of the disease: from awareness to diagnosis to management, including all the influences that can push patient towards or away from certain decisio...
  • 2021-10-15
    We’re always on the lookout for new storybooks to put on our recommended reading list. Now, a new title for kids with vitiligo caught our eye: “I’ve Got Spots!” by Danielle Wheeler. The story was initially written as a poem on June 25th 2018, the...
  • 2021-10-14
    It was 2018 when "Unite For Vitiligo" first released its list of 10 most influential people with vitiligo aka 'vitiligans.' Since then the list has been trying to be a mirror of the vitiligo community and those who shape it, including our CEO Yan ...
  • 2021-10-12
    Adults often struggle with the right ways to convey complex things — like skin health — to children without scaring the living daylights out of them. Storybooks are an incredible tool to open up a conversation, present new concepts and help childr...
  • 2021-10-05
    A couple of weeks ago, Incyte has announced its new FDA-approved topical cream Opzelura (ruxolitinib) for the short-term treatment of the atopic dermatitis. At the recent annual meeting of the European Academy of Dermatology and Venereology, Incyt...
  • 2021-10-04
    The COVID-19 mRNA vaccines not only provide remarkable protection but also have been characterized by an overall safe and well-tolerated side effect profile. To date, several registry reviews and case series have documented cutaneous vaccine react...
  • 2021-10-02
    Investigators in Brazil concluded that the severity of acute COVID-19 did not differ among patients with vitiligo, atopic dermatitis, psoriasis and other skin diseases. However, different treatments were linked to specific changes in the course of...
  • 2021-09-17
    At VR Foundation one of our priorities is to help advance medical understanding about vitiligo. We know vitiligo disease awareness is important to you too. There is currently no cure for vitiligo, no FDA-approved repigmenting treatments, nor a uni...