News

News

  • 2021-07-08
    Our CEO Yan Valle was interviewed by Swiss-based Karger Publishers for The Waiting Room, a collection of health information for the general public. The heart of the blog consists of the Knowledge Transfer, a section in which experienced medical wr...
  • 2021-07-07
    VR Foundation joins HCPLive® Strategic Alliance Partnership Program to provide better care for vitiligo patients. This multimedia platform is dedicated to providing physicians with up-to-date information on the disease and treatments.  "This syne...
  • 2021-07-02
    Last year, the vitiligo industry has been badly affected by COVID-19 pandemic. As the world haphazardly endeavors to defeat a deadly virus, many vitiligo projects in China, Germany, South Korea and the United States have been put on hold. But many...
  • 2021-06-30
    Thank you for your participation in a Vitiligo Quality of Life study!  The results from the study, when completed, will be published in the medical literature and made publicly available. A summary of the results will be posted on this website. Y...
  • 2021-06-24
    FOR IMMEDIATE RELEASE On June 25th, 2021 A Light Will Shine On Vitiligo - The World’s ‘Forgotten’ Disease The eleventh annual World Vitiligo Day (WVD) will take place on June 25th, 2021 - with Jakarta, Indonesia playing host. This annual event un...
  • 2021-06-20
    Each year on June 25, the VR Foundation (VRF) joins with the community of over 100 million people impacted by vitiligo to recognize World Vitiligo Day. This year VRF marks global celebration event with a slew of ways you can get informed on vitili...
  • 2021-06-09
    We'll give you a free digital copy of "A No-Nonsense Guide To Vitiligo" in exchange for just a few minutes of your time! When you complete the Vitiligo Quality of Life survey you will receive link to a free download of the ebook in English or Span...
  • 2021-06-09
    At VR Foundation one of our priorities is to help advance medical understanding about vitiligo. We know vitiligo disease awareness is important to you too. There is currently no cure for vitiligo, no FDA-approved repigmenting treatments, nor a uni...
  • 2021-06-07
    Can you help us with something and get a free eBook?  We’re doing a massive Vitiligo Quality of Life study. These studies are pretty standard in dermatology – they help researchers understand the impact of a disease and are normally compared on a...
  • 2021-06-07
    News releases are a tried and tested PR tactic used to get stories published by the mass media. A news release (also known as a press or media release) is a written statement issued to entice the journalist, editor, blogger or influencer to cover ...
  • 2021-06-06
    Join Valarie Molyneaux on Monday, June 7 @ 1pm for her conversation with VITFriends new addition.Mrs Tifffany Grant, is VITFriends NY co-leader and podcast co-host. Her show is called "It's called Vitiligo." Listen Live On-Air or catch up after 2...
  • 2021-06-01
    It looks like our friends in Kazakhstan will kick off World Vitiligo Day celebrations this year. Online conference will begin on June 25, 9 am local time (midnight in New York).  See program attached.  
  • 2021-06-01
    June has been declared Vitiligo Awareness Month by the Governor of Massachusetts, thanks to Valarie Molyneaux and VITFriends from Boston. Massachusetts is the home state for the majority of biotech and biopharma companies, so there is no doubt the...
  • 2021-06-01
    1st VITILIGO TOUR OF FRANCE:  4,400 km - 18 stopover cities - 1 million winners  From June 2 to 26, 2021, the French Vitiligo Association will travel across France in order to : recognize vitiligo as a real disease and improve medical and insti...
  • 2021-05-28
    A short-term online survey is set to begin on May 30, 2021. It involves individual patients and support groups, academic institutions, and small-to-medium sized clinics. Study title: Online Survey of Quality of Life of Patients with Vitiligo Brief...
  • 2021-05-24
    Our friends at LaGrippe Research are inviting parents or legal guardians of children with vitiligo to participate in brief online session. Participants must currently be caring for a child aged 12 - 18 who diagnosed with non-segmental vitiligo (t...
  • 2021-05-17
    Incyte has announced positive topline results from its pivotal Phase 3 TRuE-V trial program that evaluated topical ruxolitinib, 1.5% cream in non-segmental vitiligo. The trials met their primary goals, showing that significantly more patients trea...
  • 2021-05-01
    Do you want to share your #Vitiligo story? Whether you have been personally affected by this skin condition or have had a close experience with someone who has, now is your chance to submit a 500-word essay about how Vitiligo (or the Vitiligo Pri...
  • 2021-04-27
    The findings from the Incyte-funded trials show benefit for both continued and discontinued use of ruxolitinib cream after a long treatment period.  Presentations at recent American Academy of Dermatology Virtual Meeting Experience have highlight...
  • 2021-04-22
    Our newsletter for April is going out by email today. We go over topics like vaccination for vitiligo patients, safety of medicinal plants, AAD virtual meeting, World Vitiligo Day, FDA meeting and even city mayor elections in France.  Here is an ...
  • 2021-03-17
    On March 8, 2021 the FDA held it's very first Patient-Focused Drug Development meeting on vitiligo. It provided the vitiligo community a unique opportunity to speak directly to FDA staff, representatives of biotech companies and researchers, and o...
  • 2021-03-08
    The U.S. Food and Drug Administration (FDA) is conducting its first public meeting on Patient-Focused Drug Development for Vitiligo on March 8, 2021, from 10 am - 2.30 pm ET.  This virtual meeting is intended to allow FDA to obtain patient perspe...
  • 2021-02-08
    Our friends at LaGrippe Research are currently inviting vitiligo patients, 18 years or older, as well as a few emotional support members/family members. Participants do need to be from the USA. The purpose of this project is to gain insight to be...
  • 2020-12-03
    UPDATE: FDA is announcing a new date for the meeting. The public meeting will be held on March 8, 2021 from 10 a.m. to 2:30 p.m. EST, in a virtual (online only) format. Please save this date and time if you are interested in attending this public ...
  • 2020-12-02
    Virtual but real! The 2020 Vitiligo International Patient Organizations Conference (VIPOC) will be held virtually on Friday, December 4, 2020, followed by Vitiligo International Symposium (VIS) on Saturday and Sunday, Dec. 5-6, 2020. December 4, ...

FAQOther Questions

  • What is vitiligo?

    Vitiligo (pronounced vit-ill-EYE-go) is a relatively common skin disease characterized by smooth, white, painless spots or patches on various parts of the body and hairs above i...

  • Vitiligo and hearing loss: any connection?

    In short, NO. Recent research shows no relationship between a degree of skin depigmentation and hearing loss severity in vitiligo patients. The results of this study showed tha...

  • Which skin conditions can be mistaken for vitiligo?

    Vitiligo is a common skin condition with characteristic milky white patches of irregular shape. However, several other skin conditions exhibit similar symptoms that can lead to ...