News
- 2021-09-16For roughly 15 years, Prof. John Harris, MD, Chair of Vitiligo Clinic and Research Center at the University of Massachusetts Medical School has been intensely studying the pathogenesis of vitiligo, and working on potential treatments. In this 30-...
- 2021-09-04Graphic artist Dahja Cat is celebrating as her LGBT+ character with vitiligo skin has been officially added to Fortnite, a mega-popular video-game. Joy, originally named Dalia, was made to show the beauty of vitiligo. Joy was going to be a spy-t...
- 2021-07-08Our CEO Yan Valle was interviewed by Swiss-based Karger Publishers for The Waiting Room, a collection of health information for the general public. The heart of the blog consists of the Knowledge Transfer, a section in which experienced medical wr...
- 2021-07-07VR Foundation joins HCPLive® Strategic Alliance Partnership Program to provide better care for vitiligo patients. This multimedia platform is dedicated to providing physicians with up-to-date information on the disease and treatments. "This syne...
- 2021-06-30Thank you for your participation in a Vitiligo Quality of Life study! The results from the study, when completed, will be published in the medical literature and made publicly available. A summary of the results will be posted on this website. Y...
- 2021-06-26
- 2021-06-24FOR IMMEDIATE RELEASE On June 25th, 2021 A Light Will Shine On Vitiligo - The World’s ‘Forgotten’ Disease The eleventh annual World Vitiligo Day (WVD) will take place on June 25th, 2021 - with Jakarta, Indonesia playing host. This annual event un...
- 2021-06-20Each year on June 25, the VR Foundation (VRF) joins with the community of over 100 million people impacted by vitiligo to recognize World Vitiligo Day. This year VRF marks global celebration event with a slew of ways you can get informed on vitili...
- 2021-06-09We'll give you a free digital copy of "A No-Nonsense Guide To Vitiligo" in exchange for just a few minutes of your time! When you complete the Vitiligo Quality of Life survey you will receive link to a free download of the ebook in English or Span...
- 2021-06-07Can you help us with something and get a free eBook? We’re doing a massive Vitiligo Quality of Life study. These studies are pretty standard in dermatology – they help researchers understand the impact of a disease and are normally compared on a...
- 2021-06-07News releases are a tried and tested PR tactic used to get stories published by the mass media. A news release (also known as a press or media release) is a written statement issued to entice the journalist, editor, blogger or influencer to cover ...
- 2021-06-06Join Valarie Molyneaux on Monday, June 7 @ 1pm for her conversation with VITFriends new addition.Mrs Tifffany Grant, is VITFriends NY co-leader and podcast co-host. Her show is called "It's called Vitiligo." Listen Live On-Air or catch up after 2...
- 2021-06-01It looks like our friends in Kazakhstan will kick off World Vitiligo Day celebrations this year. Online conference will begin on June 25, 9 am local time (midnight in New York). See program attached.
- 2021-06-01June has been declared Vitiligo Awareness Month by the Governor of Massachusetts, thanks to Valarie Molyneaux and VITFriends from Boston. Massachusetts is the home state for the majority of biotech and biopharma companies, so there is no doubt the...
- 2021-06-011st VITILIGO TOUR OF FRANCE: 4,400 km - 18 stopover cities - 1 million winners From June 2 to 26, 2021, the French Vitiligo Association will travel across France in order to : recognize vitiligo as a real disease and improve medical and insti...
- 2021-05-28A short-term online survey is set to begin on May 30, 2021. It involves individual patients and support groups, academic institutions, and small-to-medium sized clinics. Study title: Online Survey of Quality of Life of Patients with Vitiligo Brief...
- 2021-05-24Our friends at LaGrippe Research are inviting parents or legal guardians of children with vitiligo to participate in brief online session. Participants must currently be caring for a child aged 12 - 18 who diagnosed with non-segmental vitiligo (t...
- 2021-05-17Incyte has announced positive topline results from its pivotal Phase 3 TRuE-V trial program that evaluated topical ruxolitinib, 1.5% cream in non-segmental vitiligo. The trials met their primary goals, showing that significantly more patients trea...
- 2021-05-01Do you want to share your #Vitiligo story? Whether you have been personally affected by this skin condition or have had a close experience with someone who has, now is your chance to submit a 500-word essay about how Vitiligo (or the Vitiligo Pri...
- 2021-04-27The findings from the Incyte-funded trials show benefit for both continued and discontinued use of ruxolitinib cream after a long treatment period. Presentations at recent American Academy of Dermatology Virtual Meeting Experience have highlight...
- 2021-04-22Our newsletter for April is going out by email today. We go over topics like vaccination for vitiligo patients, safety of medicinal plants, AAD virtual meeting, World Vitiligo Day, FDA meeting and even city mayor elections in France. Here is an ...
- 2021-03-17On March 8, 2021 the FDA held it's very first Patient-Focused Drug Development meeting on vitiligo. It provided the vitiligo community a unique opportunity to speak directly to FDA staff, representatives of biotech companies and researchers, and o...
- 2021-03-08The U.S. Food and Drug Administration (FDA) is conducting its first public meeting on Patient-Focused Drug Development for Vitiligo on March 8, 2021, from 10 am - 2.30 pm ET. This virtual meeting is intended to allow FDA to obtain patient perspe...
- 2021-02-08Our friends at LaGrippe Research are currently inviting vitiligo patients, 18 years or older, as well as a few emotional support members/family members. Participants do need to be from the USA. The purpose of this project is to gain insight to be...
- 2020-12-03UPDATE: FDA is announcing a new date for the meeting. The public meeting will be held on March 8, 2021 from 10 a.m. to 2:30 p.m. EST, in a virtual (online only) format. Please save this date and time if you are interested in attending this public ...
FAQOther Questions
- Polypodium leucotomos as an adjunct treatment for vitiligo?
Extracts of the tropical fern Polypodium leucotomos appear to have beneficial properties for the vitiligious skin. Polypodium leucotomos (also classified as Polypodium aureum) a...
- Is it Bitiligo? Vitaligo? Veteligo?
There are so many different ways that people try and spell or even pronounce Vitiligo. Here are some common mis-spellings: bitiligo, vitigo, vitaligo, vitilago, vitiglio, vita...
- Will it spread?
Vitiligo activity may vary considerably from person to person. The natural course of vitiligo is truly unpredictable but usually progressive. The most recent VALIANT study on v...
Though it is not always easy to treat vitiligo, there is much to be gained by clearly understanding the diagnosis, the future implications, treatment options and their outcomes.
Many people deal with vitiligo while remaining in the public eye, maintaining a positive outlook, and having a successful career.
Copyright (C) Bodolóczki JúliaBy taking a little time to fill in the anonymous questionnaire, you can help researchers better understand and fight vitiligo.