News

News

  • 2021-05-01
    Do you want to share your #Vitiligo story? Whether you have been personally affected by this skin condition or have had a close experience with someone who has, now is your chance to submit a 500-word essay about how Vitiligo (or the Vitiligo Pri...
  • 2021-04-27
    The findings from the Incyte-funded trials show benefit for both continued and discontinued use of ruxolitinib cream after a long treatment period.  Presentations at recent American Academy of Dermatology Virtual Meeting Experience have highlight...
  • 2021-04-22
    Our newsletter for April is going out by email today. We go over topics like vaccination for vitiligo patients, safety of medicinal plants, AAD virtual meeting, World Vitiligo Day, FDA meeting and even city mayor elections in France.  Here is an ...
  • 2021-03-17
    On March 8, 2021 the FDA held it's very first Patient-Focused Drug Development meeting on vitiligo. It provided the vitiligo community a unique opportunity to speak directly to FDA staff, representatives of biotech companies and researchers, and o...
  • 2021-03-08
    The U.S. Food and Drug Administration (FDA) is conducting its first public meeting on Patient-Focused Drug Development for Vitiligo on March 8, 2021, from 10 am - 2.30 pm ET.  This virtual meeting is intended to allow FDA to obtain patient perspe...
  • 2021-02-08
    Our friends at LaGrippe Research are currently inviting vitiligo patients, 18 years or older, as well as a few emotional support members/family members. Participants do need to be from the USA. The purpose of this project is to gain insight to be...
  • 2020-12-03
    UPDATE: FDA is announcing a new date for the meeting. The public meeting will be held on March 8, 2021 from 10 a.m. to 2:30 p.m. EST, in a virtual (online only) format. Please save this date and time if you are interested in attending this public ...
  • 2020-12-02
    Virtual but real! The 2020 Vitiligo International Patient Organizations Conference (VIPOC) will be held virtually on Friday, December 4, 2020, followed by Vitiligo International Symposium (VIS) on Saturday and Sunday, Dec. 5-6, 2020. December 4, ...
  • 2020-11-26
    It was 2018 when "Unite For Vitiligo" first released its list of 10 most influential people with vitiligo aka vitiligans. Since then the list has been trying to be a mirror of the vitiligo community and those who shape it. Just like any year, the ...
  • 2020-11-16
    News update from Boston: VITFriends reports a reversal of Tufts Insurance (MA) decision to stop covering doctors' visits related to vitiligo. We'll follow-up with more details as soon as we hear more.  Menawhile, here's our short guide to vitilig...
  • 2020-10-21
    International Dermatology Outcome Measures organization is having their virtual annual meeting from Thursday Oct 22 to Saturday Oct 24, 2020.  At this meeting, experts from all over the world are coming together virtually to discuss the best ways...
  • 2020-10-19
    Cigna, a U.S. health services company, issued a new medical coverage policy for excimer laser therapy. Previously, Cigna did not cover laser therapy for the treatment of vitiligo because such treatment was considered cosmetic and not "medically ne...
  • 2020-10-01
    Some of the world’s most knowledgeable vitiligo specialists will gather live on MyVitiligoTeam for a roundtable discussion. Medical experts - Dr. John Harris, Dr. Amit Pandya, Dr. Pearl E. Grimes and Dr. Seemal R Desai - will discuss the latest i...
  • 2020-09-14
    First patient enrolled in AVITA Therapeutic’s study in Miami earlier this week. The prospective study is evaluating the RECELL system for repigmentation of patients with stable vitiligo, meaning they have not had new vitiligo lesions or lesions th...
  • 2020-08-28
    Dr. Seemal R. Desai, M.D., FAAD, highlights new therapeutics that may impact the future of vitiligo management in this short video. He discussed this and other topics at the American Academy of Dermatology Virtual Meeting Experience in June 2020. ...
  • 2020-07-15
    Researchers investigated the therapeutic potential of Ruxolitinib cream in patients with vitiligo, and it looks very promising.  Results of a 2-year Phase II study at 26 medical centres in 18 states were published in the Lancet just now.   Ruxoli...
  • 2020-07-02
    Temprian Therapeutics, a spinoff from Northwestern University with patent for DNA-based vitiligo treatment, has made it to the finals of the Nature Spinoff Prize. The 12 finalists represent companies from the United States, United Kingdom, Switze...
  • 2020-06-26
    World Vitiligo Day grows and strengthens every year – and 2020 is no exception. Because, virus or no virus, it’s vital that people continue to speak publicly about their independence from beauty standards and bias. And at a time where BLM movemen...
  • 2020-06-25
    Hungarian vitiligo support group kicked off World Vitiligo Day 2020 celebrations with event at the Lake Balaton on June 20th. WVD webinar in China was watched by 5,51 million people!    🇭🇺 HUNGARY Adrienn Széles, a vitiligo ambassador to Hungary...
  • 2020-06-24
    As the world grapples with a global pandemic, World Vitiligo Day has moved online. So, there’s a different vibe for June 25th this year – but it will be no less memorable or important. In this short video posted here below, Yan Valle -  CEO VRF a...
  • 2020-06-23
    Inevitably, World Vitiligo Day takes on a new form this year. As the world grapples with a global pandemic, WVD has moved online. So, there’s a different vibe for June 25th this year – but it will be no less memorable or important. A celebration i...
  • 2020-04-15
    We continue IGTV series on self-confidence with Natalie Jones, a life coach and vitiligo spokesperson. Watch Part 2 on Instagram today and stay tuned for the next one! Here's Part 1 in case you missed it.  
  • 2020-04-10
    Here’s to our amazing healthcare workers who keep on keeping on through the global COVID pandemic ✨ We thank you for your service now more than ever! Tag a healthcare worker you’re thankful on Instagram #vitiligo #covid Photo: Gisel Maria  
  • 2020-04-03
    The World Vitiligo Day conference in Minneapolis, USA has been cancelled due to COVID19. Alicia Rouf, WVD 2020 USA Chair says in the newsletter:"We have been monitoring daily recommendations from the Centers for Disease Control and Prevention (CD...
  • 2020-03-15
    Am I at higher risk of catching SARS-CoV-2 if I have vitiligo? In short, NO.  The normal role of our immune system is to protect us from external and internal threats, like infections and cancers.  Yet, we do not know every detail about how the ...

FAQOther Questions

  • Vitiligo and hearing loss: any connection?

    In short, NO. Recent research shows no relationship between a degree of skin depigmentation and hearing loss severity in vitiligo patients. The results of this study showed tha...

  • Pyrostegia venusta as a folk medicine for vitiligo?

    Pyrostegia venusta is a neotropical evergreen vine widely spread in Brazil throughout fields, at the coast, edge of the woods and along roadsides (see photo below). Popularly kn...

  • Is vitiligo contagious?

    Vitiligo is NOT contagious. It cannot be passed on or caught from touching someone with vitiligo, shaking hands, swimming in the same pool, sharing towels, sitting next to someo...