Policy

1. How Does This Policy Relate to Use of the Site?

2. Information We Collect That You Do Not Provide

3. Information We Collect That You Do Provide

4. Information You Provide About Others

5. What We Generally Do with Personal Information Collected

6. Your Ability to Update Personal Information

7. Information Security

8. Your Particular Consents

9. Children

10. Identity Theft

11. Amendments

12. Transfer Information to the United States

13. Information About Enforcement of Our Policy

This Policy is part of and incorporated into the VRFoundation.org Terms of Use ("Terms of Use"), which is the contract between you and the organization governing use of the Site. Parts of the Terms of Use affect this Policy, so, unless you have already done so, please review them prior to using the Site. Terms used but not defined in this Policy have the definitions in the Terms of Use.

This Policy is supplemented by additional policies relevant to particular activities, and each of the supplemental policies is incorporated into this Policy. Here are examples of areas in which you will encounter supplemental privacy policies but this list is not complete: if a supplemental policy is included on the Site with respect to a particular activity, or if one is included on a Third Party site relating to the mission of the Vitiligo Research Foundation, those supplemental policies will also apply and are also incorporated.

Sometimes we collect personal information without you having to enter any information on the Site. For example, we may receive personal information from public sources or from third parties (which we may combine with other information from other sources).

In addition, we collect some information automatically from visitors to the Site, for example through the use of "cookies", "web beacons", and other tracking mechanisms. We collect at least the following: your domain name and host for Internet access; the Internet address of the site from which you came; the date and time of your access; your computer's IP address and information about its operating system, browser and host; the date and time you access the Site and the pages you visit. If you do not want to receive cookies, you may set your browser to reject them. However, if you turn cookies off, you may not have access to some of the Site's services and features. Unless you have adjusted your browser setting so that it will refuse cookies, our system will issues cookies when you access the Site. We also may employ Web beacons from third parties to help us compile aggregated statistics regarding the operations of our site. We prohibit Web beacons on our site from being used by third parties to collect or access your personal information.

It is always your choice, or the choice of anyone acting for you, whether to provide personal information. However, some must be provided to participate in certain programs or activities (such as to mark your organization on the World Vitiligo Map section of our website), so the decision not to provide information might limit or eliminate certain functions of the Site or the ability to participate. Other information is up to your good judgment, e.g., do not provide personal information about yourself that could be misused by others and do not provide personal information about others without their permission. The kinds of personal information we tend to request about you or others include but are not limited to your name, email address, occupation, organization name, city, state / province, region, age, locations for internet access and devices used. Additional information about what we collect is available in any supplemental privacy policies for particular activities.

Do not supply personal information about others unless you are authorized or required to do so by applicable law or contract and you consent to the Terms of Use (including this Policy and supplemental policies) on behalf of yourself and the "data subject" (the person about whom you supply personal information). Before supplying personal information about others (except as otherwise allowed by law or contract), you must make available for the data subject's review, and obtain their written consent to, said Terms of Use and policies. By submitting any personal information about others, you represent and warrant that you are authorized to do so and that you did all of the foregoing before submitting the information. If applicable law allows you to supply the information without doing the foregoing, you represent and warrant that you have abided by that law and that it allows us to receive and Disclose the information under this Policy without any further action on our part. You agree to indemnify, defend and hold us harmless against any failure by you to comply with this paragraph.

The Vitiligo Research Foundation works with Third Parties on certain programs, and often those Third Parties own and/or are responsible for that program’s Web site. In those cases, if you provide personal information, you will be giving it to a third party and their privacy policy will apply. You agree that if they provide it to us then we may apply our Policy to what we receive.

In general, we use personal information we collect to pursue our mission and operations and to engage in the activity (and related activities) for which we collect it. Specifically, we may use your personal information to:

• to fulfill our obligations to you and to respond to any questions or requests;

• to contact you about material changes in our site terms or policies;

• to comply with the law or in good faith belief that such action is necessary to conform with the requirements of law or to comply with legal process served on us;

• to provide to third parties as a result of any reorganization process;

• if you sign up for a newsletter, we may put you on our mailing list or even the list of a Third Party who we think has a similar mission.

• if you apply for a job, we'll use the information to find out about you and share it with service providers and others we view as relevant to the employment process.

Further information is available in the supplemental policies for some activities, but you should assume that we will use all information for all lawful purposes. Subject to applicable law, we reserve the right to make all lawful, worldwide uses of personal information, including without limitation, to: collect, use, access (or bar access), process, fulfill, disclose, display, share, respond to legal process or otherwise exercise our rights under applicable law, transfer, store, verify, enforce, delete, and otherwise deal with personal information, and information other than personal information (collectively “Disclose").

To the extent our systems require your personal information, in general, they provide the ability for you to update your information. If you have any questions about what personal information about you the Vitiligo Research Foundation retains, please contact us at . The organization endeavors to keep your personal information accurate and up to date. If your personal information has changed, you may submit your new information there as well. Some activities allow some updating, e.g., you may update your or your organization’s “World Vitiligo Map" profile by using the functionality in that section of the Site.

We keep personal information for as long as we think is necessary or advisable and we reserve the right to retain it to the full extent not prohibited by law. We may discard personal information in our discretion, so you should retain your own records, and not rely upon our storage of any personal information or other data.

We use reasonable technical and organizational measures to protect the personal information received from our users from unauthorized use or disclosure.

In addition to consenting to the Terms of Use, including this Policy (and any relevant supplemental policies), the Vitiligo Research Foundation is interested in letting you know about, and receiving your particular consent to, a few activities relating to personal information that will help us to deal with personal information that is Disclosed in furtherance of our mission, operations and programs. These are described immediately below.

• Consent to International Transfer and Disclosure of Personal Information. We are involved in programs and activities in a variety of countries. You agree that the Foundation and those with whom we share personal information ("Recipients") may Disclose and transfer your personal information worldwide (including outside the European Economic Area, if you are based in the European Economic Area) for any purpose relating to our or their mission, operations, programs, or otherwise that is not allowed or prohibited by this Policy.

• Consent to Electronic Notice If There is a Security Breach: If we or a Recipient is required to provide notice of unauthorized access or other invasion of certain security systems, you agree that we (or they) may do so when required (or voluntarily) by posting notice on our Site or sending notice to any email address we have for you, in our (or their) good faith discretion. You agree that notice to you will count as notice to others for whom you are acting, and agree to pass the notice on to them.

The Websites are for a general audience and are not designed or intended for use by children, especially those under age thirteen (13) or sixteen (16) in the EU.

If anyone believes they're a victim of identity theft entitled by law to request information from us, write us at Our Address For Legal Notices and we'll explain what information we require in order to respond. After receiving that information, we’ll supply (without charge) information we then have that we are legally required to provide (subject to applicable law and reserving all rights and defenses).

We will be changing what we do and how and why we Disclose data periodically—this Policy describes what we currently envision, but that will change as we change. You agree that this Policy amends and replaces any previous privacy polic(ies). We may further amend all or part of this Policy in the same way that we make amendments to our Terms of Use and such amended versions will be posted on this page.

This Policy becomes effective on May 18, 2018, and applies to all information previously obtained by Vitiligo Research Foundation.

The Websites are operated in the United States of America (USA) and are intended for users located in the USA. If you are located outside of the USA, please note that the information you provide to us will be transferred to and processed in the USA, where laws regarding processing of personal data may be less stringent than the laws in your country.

This Policy is part of and supplemented by our Terms of Use, which together with any supplemental privacy policy form a contract. If there is a conflict between the Terms of Use and this Policy, the latest version of this Policy will control. We and you are bound by the Terms of Use, including this Policy. If you think we are in default, you may contact us by writing to Our Address For Legal Notices. There are no third party beneficiaries of this Policy.

Our Address for Legal Notices:

Vitiligo Research Foundation

1, Penn Plaza, P.O. Box 6205

New York, NY 10119

United States of America

Attn: Legal