New
The biennial event of Vitiligo International Patient Organizations Conference (VIPOC) goes to Amsterdam, the Netherlands, on April 21-23, 2022. Join us live via Zoom
PROGRAM
Wednesday April 20th
- Afternoon - Arrival, welcoming cocktail and diner hosted by Vitiligo.nl, the Dutch Vitiligo Patient Association
Thursday April 21st - Patient leader’s day
- Presentation of the Vitiligo patient groups delegates (Paul Monteiro, Nicole Maquignon)
- Round table (all VIPOC participants)
- Vitiligo presentations worldwide tour (10 min per country)
- Why to build vitiligo strategy and advocacy focus (Jean-Marie Meraunt, Richard Huggins, Yan Valle)
- Regional focus working groups (all participants)
- Proposal's summary and strategy definition (working group leaders)
- Synthesis (Georg Pliszewski)
Lunch
- Patient engagement at European Medicament Agency view (Maria Mavris)
- Q&A with all participants
- VITAL project : presentation, patient organization involvement – Q&A (Nanja Van Geel)
- VITAL working groups (all participants)
Break
- VIPOC AGM and Board meeting
- Summary of the day
Friday April 22nd - Science day
- Presentation study: vitiligo / COVID (Nicolin Post)
- Introduction program + vitiligo guidelines first chapter (Nanja Van Geel)
- Physiopathology of vitiligo (Julien Seneschal)
- Topical treatments (Albert Wolkerstorfer, Jung Min Bae)
- Phototherapy (Giovanni Leone, Samia Esmat)
- Oral steroids (Markus Bohm, Marwa Abdallah)
- Systemic interventions (Reinhart Speeckaert, Mauro Picardo)
- Surgical interventions (Iltefat Hamzavi, Laila Benzekri)
Lunch
- Workshop patient focus group
- Depigmentation (Khaled Ezzedine, Caroline Le Poole)
- Other interventions (Marcel Bekkenk, Jean-Marie Meraunt, Viktoria Eleftheriadou)
- Innovative and emerging strategies (Davinder Parsad, Amit Pandya)
- Link to survey vitiligo guidelines, part 1
Break
- Round table discussion
- Link to survey vitiligo guidelines, part 2
- Closing
Saturday 23rd - Pharma day
- Morning: Working groups with Pharma industries
- Afternoon: Cultural understanding of arts (Rijksmuseum visit), visit of Amsterdam
- Evening: VIPOC conference closing dinner
Sunday 24th - Wrapping up
- Morning session: what did we good / bad and how to improve it next time?
UPDATE:
PHOTOS and REPORT (download pdf here below)
Introducing Vitiligo Patient Journey Map
VIPOC President Jean-Marie Meraunt welcomes online participants
Paul Monteiro and Nicole Maquignon are presenting VIPOC
At the VIPOC roundtable
Jackie Gardner, VSI President, is talking to online participants
Prof. Albert Wolkerstorfer is discussing topical therapies for vitiligo
FAQOther Questions
- What is the best therapy for localized vitiligo?
Localized vitiligo, where the white patches are limited to one or a few areas of the body, can be managed with a few treatment approaches. The best therapy usually depends on th...
- Is it possible to stop the progression of vitiligo?
It is true that vitiligo progression could be stopped in 4 out of 5 cases by the use of potent systemic corticosteroids - that is, oral medications. However, systemic corticost...
- Is there a link between vitiligo and depression?
Yes, depression and anxiety often occur alongside vitiligo and can greatly affect a person's quality of life. The connection comes from the fact that both the skin and brain dev...
Though it is not always easy to treat vitiligo, there is much to be gained by clearly understanding the diagnosis, the future implications, treatment options and their outcomes.
Many people deal with vitiligo while remaining in the public eye, maintaining a positive outlook, and having a successful career.
Copyright (C) Bodolóczki JúliaBy taking a little time to fill in the anonymous questionnaire, you can help researchers better understand and fight vitiligo.