News - 21 Apr `22VIPOC Conference in Amsterdam

New

The biennial event of Vitiligo International Patient Organizations Conference (VIPOC) goes to Amsterdam, the Netherlands, on April 21-23, 2022. Join us live via Zoom 

 

PROGRAM

Wednesday April 20th 

Thursday April 21st - Patient leader’s day

  • Presentation of the Vitiligo patient groups delegates (Paul Monteiro, Nicole Maquignon)
  • Round table (all VIPOC participants)
  • Vitiligo presentations worldwide tour (10 min per country)
  • Why to build vitiligo strategy and advocacy focus (Jean-Marie Meraunt, Richard Huggins, Yan Valle)
  • Regional focus working groups (all participants)
  • Proposal's  summary and strategy definition (working group leaders)
  • Synthesis (Georg Pliszewski)

Lunch

  • Patient engagement at European Medicament Agency view (Maria Mavris)
  • Q&A with all participants
  • VITAL project : presentation, patient organization involvement – Q&A (Nanja Van Geel)
  • VITAL working groups (all participants)

Break

  • VIPOC AGM and Board meeting 
  • Summary of the day

Friday April 22nd - Science day 

  • Presentation study: vitiligo / COVID (Nicolin Post)
  • Introduction program + vitiligo guidelines first chapter (Nanja Van Geel)
  • Physiopathology of vitiligo (Julien Seneschal)
  • Topical treatments (Albert Wolkerstorfer, Jung Min Bae)
  • Phototherapy (Giovanni Leone, Samia Esmat)
  • Oral steroids (Markus Bohm, Marwa Abdallah)
  • Systemic interventions (Reinhart Speeckaert, Mauro Picardo)
  • Surgical interventions (Iltefat Hamzavi, Laila Benzekri)

Lunch

  • Workshop patient focus group
  • Depigmentation (Khaled Ezzedine, Caroline Le Poole)
  • Other interventions (Marcel Bekkenk, Jean-Marie Meraunt, Viktoria Eleftheriadou)
  • Innovative and emerging strategies (Davinder Parsad, Amit Pandya)
  • Link to survey vitiligo guidelines, part 1

Break

  • Round table discussion
  • Link to survey vitiligo guidelines, part 2
  • Closing

Saturday 23rd  - Pharma day

  • Morning: Working groups with Pharma industries
  • Afternoon: Cultural understanding of arts (Rijksmuseum visit), visit of Amsterdam
  • Evening: VIPOC conference closing dinner

Sunday 24th - Wrapping up

  • Morning session: what did we good / bad and how to improve it next time?

UPDATE:

PHOTOS and REPORT (download pdf here below)

Introducing Vitiligo Patient Journey Map

VIPOC-2022-Jean-Marie-Meraunt

VIPOC President Jean-Marie Meraunt welcomes online participants

VIPOC-2022-conference

Paul Monteiro and Nicole Maquignon are presenting VIPOC

VIPOC-2022-patient-support-group-leaders

At the VIPOC roundtable

VIPOC-2022-Jackie-Gardner

Jackie Gardner, VSI President, is talking to online participants

VIPOC-2022-Albert-Wolkerstorfer

Prof. Albert Wolkerstorfer is discussing topical therapies for vitiligo

VIPOC-2022-Vitiligo-UK

 

    FAQOther Questions

    • Is it possible to stop the progression of vitiligo?

      It is true that vitiligo progression could be stopped in 4 out of 5 cases by the use of potent systemic corticosteroids - that is, oral medications. However, systemic corticost...

    • What causes vitiligo?

      Surprisingly, the causes of vitiligo are yet to be precisely established. Researchers know the cause is pre-wired in your genes, just waiting for a bad luck moment. In about hal...

    • What's better: laser or phototherapy?

      In a recent study researchers assessed effect and safety of different laser and phototherapy treatments, such as excimer laser/light, narrowband UVB, UVA and PUVA. No significa...