News - 21 Apr `22VIPOC Conference goes live

New

Vitiligo International Patient Organizations Conference (VIPOC) is going live from Amsterdam! This biennial event begins this time in Amsterdam, the Netherlands, on April 21-23, 2022.

Join us live via Zoom 

 

PROGRAM

Wednesday April 20th 

Thursday April 21st - Patient leader’s day

  • Presentation of the Vitiligo patient groups delegates (Paul Monteiro, Nicole Maquignon)
  • Round table (all VIPOC participants)
  • Vitiligo presentations worldwide tour (10 min per country)
  • Why to build vitiligo strategy and advocacy focus (Jean-Marie Meraunt, Richard Huggins, Yan Valle)
  • Regional focus working groups (all participants)
  • Proposal's  summary and strategy definition (working group leaders)
  • Synthesis (Georg Pliszewski)

Lunch

  • Patient engagement at European Medicament Agency view (Maria Mavris)
  • Q&A with all participants
  • VITAL project : presentation, patient organization involvement – Q&A (Nanja Van Geel)
  • VITAL working groups (all participants)

Break

  • VIPOC AGM and Board meeting 
  • Summary of the day

Friday April 22nd - Science day 

  • Presentation study: vitiligo / COVID (Nicolin Post)
  • Introduction program + vitiligo guidelines first chapter (Nanja Van Geel)
  • Physiopathology of vitiligo (Julien Seneschal)
  • Topical treatments (Albert Wolkerstorfer, Jung Min Bae)
  • Phototherapy (Giovanni Leone, Samia Esmat)
  • Oral steroids (Markus Bohm, Marwa Abdallah)
  • Systemic interventions (Reinhart Speeckaert, Mauro Picardo)
  • Surgical interventions (Iltefat Hamzavi, Laila Benzekri)

Lunch

  • Workshop patient focus group
  • Depigmentation (Khaled Ezzedine, Caroline Le Poole)
  • Other interventions (Marcel Bekkenk, Jean-Marie Meraunt, Viktoria Eleftheriadou)
  • Innovative and emerging strategies (Davinder Parsad, Amit Pandya)
  • Link to survey vitiligo guidelines, part 1

Break

  • Round table discussion
  • Link to survey vitiligo guidelines, part 2
  • Closing

Saturday 23rd  - Pharma day

  • Morning: Working groups with Pharma industries
  • Afternoon: Cultural understanding of arts (Rijksmuseum visit), visit of Amsterdam
  • Evening: VIPOC conference closing dinner

Sunday 24th - Wrapping up

  • Morning session: what did we good / bad and how to improve it next time?

UPDATE: PHOTOS

Introducing Vitiligo Patient Journey Map

VIPOC-2022-Jean-Marie-Meraunt

VIPOC President Jean-Marie Meraunt welcomes online participants

VIPOC-2022-conference

Paul Monteiro and Nicole Maquignon are presenting VIPOC

VIPOC-2022-patient-support-group-leaders

At the VIPOC roundtable

VIPOC-2022-Jackie-Gardner

Jackie Gardner, VSI President, is talking to online participants

VIPOC-2022-Albert-Wolkerstorfer

Prof. Albert Wolkerstorfer is discussing topical therapies for vitiligo

VIPOC-2022-Vitiligo-UK

 

      FAQOther Questions

      • Shall I take vitamin D for my vitiligo?

        In Brief Vitamin D plays a central role in the prevention of different inflammatory and chronic diseases. Consuming 1,000–4,000 IU (25–100 mcg) of vitamin D3 daily should be id...

      • What tests should be done?

        A well-trained dermatologist should be able to diagnose vitiligo and distinguish it from contact leukoderma or more than twenty other conditions with similar skin appearance bas...

      • I have vitiligo: will my children have vitiligo, too?

        Children born to parents who both have the disorder are more likely to develop vitiligo. However, most children will not get vitiligo even if one parent has it. In children with...