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Were winding down our scientific programs to focus on policy-making and education.
This is a unanimous decision made by the VR Foundation Board of Directors, after careful deliberation about how best to serve the vitiligo community. In a way, we are a victim of our own success in transforming the landscape of vitiligo research, awareness and funding.
Our work has profoundly changed the lives of nearly 100 million vitiligo sufferers and their families. But this comes at a cost - in time, money and effort. The increasing range and volume of global activities is overwhelming our small non-profit organization. Something had to give, which is a major reason for withdrawing the scientific programs.
We have achieved far more in the scientific field than we thought possible, but now its time to draw back. We must consider what remaining elements of our scientific program should continue, and how to facilitate free access to our data.
You deserve a full explanation. Check out your mailbox for our newsletter this weekend and you will learn where do we go from here.
This is in no way an epilogue for the VRF. Its simply an announcement of a new chapter in our story.
Yan Valle,
CEO VR Foundation
FAQOther Questions
- What are risks of oral and topical corticosteroids?
Corticosteroid drugs (like hydrocortisone, and others) are often used for treating vitiligo. By mimicing the effects of hormones your body produces naturally in your adrenal gla...
- Does vitiligo increase the risk of skin cancer?
No, it does not. Despite common misconceptions, people with vitiligo are actually at a lower risk of developing skin cancer—including both nonmelanoma skin cancer (NMSC) and mal...
- How can I explain vitiligo to my children?
Vitiligo can be confusing for children because it doesn’t resemble an "illness" in the typical sense. Choosing the right way to explain it depends on your child’s age and maturi...
Though it is not always easy to treat vitiligo, there is much to be gained by clearly understanding the diagnosis, the future implications, treatment options and their outcomes.
Many people deal with vitiligo while remaining in the public eye, maintaining a positive outlook, and having a successful career.
Copyright (C) Bodolóczki JúliaBy taking a little time to fill in the anonymous questionnaire, you can help researchers better understand and fight vitiligo.