June 21st might be one of 2019 most important dates for all of us this year. That’s because the conference themed "The Mental and Medical Journey of Living with Vitiligo - The Journey Starts with ME!" in Houston (TX) kicks off the World Vitiligo Day celebrations. So much information packed into just three days.
A panel of well-known speakers will cover various subjects, from new research discoveries through treatments to coping with vitiligo effects (program, PDF). But you don’t have to attend all the presentations in three days. The main events will take place on June 22. Catching just half a day of your favorite speakers live is an exhilarating experience. You can’t replicate it on video, it isn’t the same.
Personally, I can't wait to hear what Dr. John Harris has to say about excellent results of Phase II clinical trials for topical ruxolitinib, a selective JAK inhibitor. If all goes well in the Phase III trails scheduled for late 2019, this compound could be the first FDA-approved medical treatment to reverse vitiligo. For plain language details check announcement from Incyte or download a scientific presentation from UMass, — if you aren't easily scared by graphs and formulas.
The whole concept of synergistic therapies for vitiligo has been around for quite a while — like bFGF peptide lotion currently marketed in India but patented worldwide. It's therapeutic effects are usually hit or miss, in my practical observation. But new approaches to disrupting the signaling pathways and other anti-autoimmune therapies under development seem to be distinctly different, or else we'll be witnessing a messy patent battle.
However, if you can't physically be present at the conference — like most readers — I hope to transmit this collective excitement and wisdom somehow through the live stream either on the official WVD Facebook page or our Instagram. So if you’re at all interested vitiligo matters, don’t deprive yourself of the fun and save June 22nd for your virtual attendance.
- What's better: laser or phototherapy?
In a recent study researchers assessed effect and safety of different laser and phototherapy treatments, such as excimer laser/light, narrowband UVB, UVA and PUVA. No significa...
- Is it Bitiligo? Vitaligo? Veteligo?
There are so many different ways that people try and spell or even pronounce Vitiligo. Here are some common mis-spellings: bitiligo, vitigo, vitaligo, vitilago, vitiglio, vita...
- Is it possible to stop the progression of vitiligo?
It is true that vitiligo progression could be stopped in 4 out of 5 cases by the use of potent systemic corticosteroids - that is, oral medications. However, systemic corticost...
Our work is entirely funded by private donations – we receive no money from government. Your money will help us continue funding research into vitiligo and supporting people affected by the condition.
Though it is not always easy to treat vitiligo, there is much to be gained by clearly understanding the diagnosis, the future implications, treatment options and their outcomes.
Many people deal with vitiligo while remaining in the public eye, maintaining a positive outlook, and having a successful career.Copyright (C) Bodolóczki Júlia
By taking a little time to fill in the anonymous questionnaire, you can help researchers better understand and fight vitiligo.