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Save-the-Date for the much anticipated Vitiligo Advocacy Day at the United States Capitol this fall.
As many of you know, the Advocacy Committee of the Global Vitiligo Foundation is tasked with the following goals:
- Help educate, advocate and promote education and awareness of vitiligo to local, state and federal government entities, insurance companies, third party payers, and special interest groups
- Increase awareness of vitiligo as a disease, its treatment, and patient related issues to policymakers through efforts of advocacy and by combining the efforts of vitiligo clinicians, researchers, patients, support groups.
- Have a continual and ultimate goal of finding a cure for this devastating disease.
To that end, this year's Vitiligo Day goal is to meet with federal elected officials and lobby at Capitol Hill on October 4, 2017.
Please mark your calendars to arrive by the evening of October 3, 2017 if at all possible. More details will follow as we set-up the logistics, and Vicki Tiahrt and Seemal Desai will be in touch with follow-up. We would be very happy to have as many patients, support group representatives, and friends of vitiligo in Washington with us that day!
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Though it is not always easy to treat vitiligo, there is much to be gained by clearly understanding the diagnosis, the future implications, treatment options and their outcomes.
Many people deal with vitiligo while remaining in the public eye, maintaining a positive outlook, and having a successful career.Copyright (C) Bodolóczki Júlia
By taking a little time to fill in the anonymous questionnaire, you can help researchers better understand and fight vitiligo.