The U.S. Food and Drug Administration (FDA) is conducting its first public meeting on Patient-Focused Drug Development for Vitiligo on March 8, 2021, from 10 am - 2.30 pm ET.
This virtual meeting is intended to allow FDA to obtain patient perspectives on the impact of vitiligo.
Topic 1: Health effects and daily impacts that matter most to patients
1. Which aspects of vitiligo have the most significant impact on your life?
2. Are there specific activities that are important to you but that you cannot do at all or as fully as you would like because of your vitiligo?
3. How has your vitiligo changed over time?
4. What worries you most about your vitiligo?
Topic 2: Patients’ perspectives on current approaches to treatment
1. What are you currently doing to help treat your vitiligo?
2. How well does your current treatment regimen treat the most significant aspects of your vitiligo?
3. What are the most significant downsides to your current treatments, and how do they affect your daily life?
4. Assuming there is no complete cure for your vitiligo, what specific things would you look for in an ideal treatment for your vitiligo?
5. What factors do you consider when making decisions about selecting a course of treatment?
To virtually attend this meeting today, please visit the FDA page
The meeting materials are now available on the FDA's website:
- What is vitiligo?
Vitiligo (pronounced vit-ill-EYE-go) is a relatively common skin disease characterized by smooth, white, painless spots or patches on various parts of the body and hairs above i...
- How can I explain vitiligo to my children?
Vitiligo can be puzzling for a child because a person who has it isn't "ill" in a common sense. To choose the right words to explain vitiligo diagnosis to a child, first consi...
- Can Ginkgo Biloba help with vitiligo?
Ginkgo Biloba seems to be a simple, safe, inexpensive and fairly effective therapy for vitiligo. It is mostly effective in halting the progression of the disease. It can also sp...
Our work is entirely funded by private donations – we receive no money from government. Your money will help us continue funding research into vitiligo and supporting people affected by the condition.
Though it is not always easy to treat vitiligo, there is much to be gained by clearly understanding the diagnosis, the future implications, treatment options and their outcomes.
Many people deal with vitiligo while remaining in the public eye, maintaining a positive outlook, and having a successful career.Copyright (C) Bodolóczki Júlia
By taking a little time to fill in the anonymous questionnaire, you can help researchers better understand and fight vitiligo.