I suspect you’re not aware of the huge science scandal of the moment. At least 31 papers by three former Harvard researchers are being retracteddue to falsified and fabricated data. The authors of withdrawn papers helped waste hundreds of millions of dollars by the companies that allegedly developed stem cell therapies.
Uhm? How is this related to vitiligo? Well, stick with me for a moment.
A staggering amount of publications on vitiligo indexed by Pubmed.gov -- over 400 in the last year alone -- indicates an increased interest in this once obscure disease. It is unclear, however, how much of this volume is truly advancing science or improving clinical practice, and how much is just a hype or worse. Even the best efforts of reputable journals like the Nature, the Cell or Wiley's Dermatologic Therapy are not enough to clean up the system. The 'Harvard Scandal' may be a good thing for vitiligo by protecting biotech startups from questionable research data and costly mistakes.
Thankfully, there are few safe harbours for you to explore. In a recent podcast interview, Dr. John Harris, associate professor of medicine and director of the Vitiligo Clinic and Research Center at UMass Medical School, explains in plain English the promising research, ongoing clinical trials, overlap with other diseases, advanced treatments for kids and adults, talks about Michael Jackson and the stigma associated with having vitiligo. I enjoyed every moment of this 25-minute podcast and hope you will do, too.
Continue reading November's newsletter here.
- Does halo nevi affect vitiligo development?
Halo nevi — nevi with an depigmented circle around it, usually on the trunk — are about 10x more common in vitiligo patients than in the general population, especially in childr...
- How can I cure vitiligo?
There is no cure for vitiligo, but there are a number of effective treatment options that can be discussed with your GP or dermatologist. The aim of treatment is to stop new pat...
- Who is prone to vitiligo?
Scientists know that some people are genetically predisposed to a specific group of autoimmune diseases – including generalized vitiligo – but do not know who and why.It doesn’t...
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Though it is not always easy to treat vitiligo, there is much to be gained by clearly understanding the diagnosis, the future implications, treatment options and their outcomes.
Many people deal with vitiligo while remaining in the public eye, maintaining a positive outlook, and having a successful career.Copyright (C) Bodolóczki Júlia
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