I suspect you’re not aware of the huge science scandal of the moment. At least 31 papers by three former Harvard researchers are being retracteddue to falsified and fabricated data. The authors of withdrawn papers helped waste hundreds of millions of dollars by the companies that allegedly developed stem cell therapies.
Uhm? How is this related to vitiligo? Well, stick with me for a moment.
A staggering amount of publications on vitiligo indexed by Pubmed.gov -- over 400 in the last year alone -- indicates an increased interest in this once obscure disease. It is unclear, however, how much of this volume is truly advancing science or improving clinical practice, and how much is just a hype or worse. Even the best efforts of reputable journals like the Nature, the Cell or Wiley's Dermatologic Therapy are not enough to clean up the system. The 'Harvard Scandal' may be a good thing for vitiligo by protecting biotech startups from questionable research data and costly mistakes.
Thankfully, there are few safe harbours for you to explore. In a recent podcast interview, Dr. John Harris, associate professor of medicine and director of the Vitiligo Clinic and Research Center at UMass Medical School, explains in plain English the promising research, ongoing clinical trials, overlap with other diseases, advanced treatments for kids and adults, talks about Michael Jackson and the stigma associated with having vitiligo. I enjoyed every moment of this 25-minute podcast and hope you will do, too.
Continue reading November's newsletter here.
- How long does it take to treat vitiligo?
Treatment results will vary by person and type of vitiligo. The rule of thumb is that you will need to allow at least 3 to 6 months before you begin to see results from any trea...
- I have a new job - should I tell colleagues about my vitiligo?
If you are starting a new job and you are concerned about stares and questions about your skin, try a proactive approach. When the time is right and you are feeling comfortable,...
- Is there a special diet for vitiligo?
We have specifically looked into claims that some food supplements or special diet may ease symptoms of vitiligo, or completely reverse it, and found no firm scientific evidence...
Our work is entirely funded by private donations – we receive no money from government. Your money will help us continue funding research into vitiligo and supporting people affected by the condition.
Though it is not always easy to treat vitiligo, there is much to be gained by clearly understanding the diagnosis, the future implications, treatment options and their outcomes.
Many people deal with vitiligo while remaining in the public eye, maintaining a positive outlook, and having a successful career.Copyright (C) Bodolóczki Júlia
By taking a little time to fill in the anonymous questionnaire, you can help researchers better understand and fight vitiligo.