News - 28 May `21๐Ÿ‡บ๐Ÿ‡ณ Vitiligo Quality Of Life: Study Announcement

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A short-term online survey is set to begin on May 30, 2021. It involves individual patients and support groups, academic institutions, and small-to-medium sized clinics.
 
Study title: Online Survey of Quality of Life of Patients with Vitiligo
 
Brief description: This online survey posted on Google Forms is designed to compare Quality of Life measure of patients with vitiligo in different countries within the same timeframe that could potentially relate to region-specific burden of the disease. 
 
Background: Vitiligo affects all ages, sexes and social groups and approximately 1–2% of the world population. It is typically characterized by smooth white patches in the midst of normally pigmented skin, which gradually expand over time. Besides skin manifestation and frequent comorbidities, symptoms such as depression, anxiety, sleep disorders and suicidal thoughts are very common in people affected by this disease. Although primarily viewed as a benign skin condition, vitiligo has severe socioeconomic effects, which have a substantial impact on many aspects of physical, emotional, and mental well-being.
 
Study type: Observational
 
Study dates:
๐Ÿ‘‰๐Ÿป Start date: May 30, 2021
Estimated completion date: June 30, 2021
 
Estimated enrollment: over 10,000 participants
 
Eligibility criteria:
            Ages eligible for study: 16+ (Adult, Senior)
            Sexes eligible for study: All
            Sampling method: Non-probability sample
 
Study population: Individuals self-reporting vitiligo
 
Outcome measures: Dermatology Life Quality Index
 
Participation criteria:
            Inclusion criteria: Ability to complete a 10-question survey
            Exclusion criteria: Inability to complete a 10-question survey
 
Locations: Online, healthcare institutions and participating vitiligo support groups locations in 100 countries
 
Sponsor: Vitiligo Research Foundation (VRF)
 
Principal investigator: Yan Valle, CEO VRF
 
Contacts: email info@vrfoundation.org or write to 1, Penn Pl. #6205, New York NY 10119 USA
 
Guidelines on use: VR Foundation will provide guidance on how to distribute to and collect the questionnaire from the target, so that partners and practitioners alike apply it judiciously and responsibly for a given purpose.
 
Validated survey forms for select countries (๐Ÿ‘‰๐Ÿป other country-specific forms are available upon request):

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