I’m writing this newsletter to share with you a few highlights from the World Vitiligo Day Conference just outside of Houston, Texas. Special thanks to Diane Tribitt and her great HVAM team for making it all possible. The conference began Friday evening, when I had the pleasure to mix & mingle with key people in vitiligo community and research.
Lee Thomas — who needs no introduction — kicked off the annual celebrations with an emotional speech; check out photos and videos on WVD Facebook now. Emoetry Speaks took over the stage with a poetic expression of vitiligo lifestyle. A fashion and dance show rocked the ballroom until late evening.
In between the bursts of energy and laugher I had a chance to chat with Laura Bosworth, president of TeVido BioDevices. Laura is dynamic former Fortune 50 executive, so she is most definitely worth listening to. TeVido is prepping for a product launch in a few weeks, and we agreed I will report separately on this.
The main WVD 2019 theme in the U.S. is ‘Vitiligo Journey — Healing Starts With Me!’ and this conference may have a significant consequence for everyone. I expect a great deal of insights that will steer the vitiligo therapy development into a certain direction.
I can’t possibly explain in an email everything that’s been discussed on the WVD stage so far, but one attendee said to me, “I’ve already learned more about vitiligo in two hours than I have all year.” And we’re just getting started.
My apologies for not being able to do a live broadcast from the conference because of the poor internet connection there. If you want to see videos, photos, and presentations of this amazing conference, check out our website in a couple of days.
I’ll be back with more later today, including notes on treatments from Dr. Amit Pandya and research update from Dr. John Harris.
CEO VR Foundation
- Can Ayurveda help with vitiligo?
People have used herbs and natural remedies to treat skin conditions for centuries. Vitiligo is an auto-immune condition that causes white patches of skin to develop and expand...
- Is it Bitiligo? Vitaligo? Veteligo?
There are so many different ways that people try and spell or even pronounce Vitiligo. Here are some common mis-spellings: bitiligo, vitigo, vitaligo, vitilago, vitiglio, vita...
- Is it possible to stop the progression of vitiligo?
It is true that vitiligo progression could be stopped in 4 out of 5 cases by the use of potent systemic corticosteroids - that is, oral medications. However, systemic corticost...
Our work is entirely funded by private donations – we receive no money from government. Your money will help us continue funding research into vitiligo and supporting people affected by the condition.
Though it is not always easy to treat vitiligo, there is much to be gained by clearly understanding the diagnosis, the future implications, treatment options and their outcomes.
Many people deal with vitiligo while remaining in the public eye, maintaining a positive outlook, and having a successful career.Copyright (C) Bodolóczki Júlia
By taking a little time to fill in the anonymous questionnaire, you can help researchers better understand and fight vitiligo.