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World Vitiligo Day is an incredible chance to educate, create awareness, gather signatures, and support those impacted by this psychologically intense health condition. Our toolkit provides the information and tools needed to partake in this international initiative.
What You Need
Ensure you've got these from the organizers - either as templates or ready-to-print PDFs:
- Sample Media Release and/or Newsletter
- Sample Invitation to Journalists
- World Vitiligo Day Wall Posters
- UN Petition Leaflets
- Vitiligo Q&A
- Web Badges
- Links to Dedicated Websites, YouTube, and Facebook Pages
Planning and promoting an event can feel overwhelming, but we've got you covered with some helpful tips.
Planning Ahead
- Reach out to the VR Foundation or your local vitiligo support group a few months prior for up-to-date materials and info.
- Rope in local businesses, government agencies, healthcare organizations, opinion leaders, and media partners.
- Recruit volunteers, guest speakers, and community liaisons.
- Create or modify materials for distribution. Make sure you have them ready well in advance.
- Run a dress rehearsal a few days before June 25.
Spreading the Word
- Draft a media outreach strategy. Include local TV stations, radio, newspapers, and community calendars.
- Send out a Media Release on June 20-21.
- Post about the event on your website, social media pages, and ask your friends and partners to do the same.
- Put up posters around your town - at community centers, religious places, schools, clinics, stores, and more.
- Set up directional signs for the big day.
On World Vitiligo Day - June 25
- Make sure you've got enough petition leaflets.
- Set up tables and chairs, possibly at a local community center.
- Prepare a sign-in sheet for media attendees.
- Ask people to sign the petition leaflets.
- Don't forget the snacks!
- Collect the signed petitions and send them to the VR Foundation or fill out the form at 25June.org on behalf of each participant.
Following Up
- Check in with the reporters who attended.
- Monitor media coverage using tools like Google Alerts. If your budget allows, consider paid media tracking for a more comprehensive overview.
- Share any media coverage with your community partners and stakeholders. Post a summary on your website.
- Regardless of how big or successful your event is, remember that every effort counts in raising awareness about this often overlooked condition.
FAQOther Questions
- Can Ginkgo Biloba help with vitiligo?
Ginkgo Biloba seems to be a simple, safe, inexpensive and fairly effective therapy for vitiligo. It is mostly effective in halting the progression of the disease. It can also sp...
- What are risks of oral and topical corticosteroids?
Corticosteroid drugs (like hydrocortisone, and others) are often used for treating vitiligo. By mimicing the effects of hormones your body produces naturally in your adrenal gla...
- What's better: laser or phototherapy?
In a recent study researchers assessed effect and safety of different laser and phototherapy treatments, such as excimer laser/light, narrowband UVB, UVA and PUVA. No significa...
Though it is not always easy to treat vitiligo, there is much to be gained by clearly understanding the diagnosis, the future implications, treatment options and their outcomes.
Many people deal with vitiligo while remaining in the public eye, maintaining a positive outlook, and having a successful career.
Copyright (C) Bodolóczki JúliaBy taking a little time to fill in the anonymous questionnaire, you can help researchers better understand and fight vitiligo.